Where have you experienced pain due to PMR?H

Welcome @23amy, I think you might find this discussion started by @dadcue helpful for learning more about PMR.
-- Comprehensive Overview Of PMR: https://connect.mayoclinic.org/discussion/comprehensive-overview-of-pmr/

You mentioned being diagnosed last year. Were you started on prednisone or other treatment? Did it provide relief for your symptoms?

I was prescribed 20mg prednisone & Kevzara. Yes it helped but I went from 175lbs to 196lbs. I tapered down to 5mg but had to increase to 10mg due to flare ups.

My pain from PMR goes into my calves, all the way up the back of my legs, up to my waist and then into my arms, and across my back and shoulders. It can be so painful that I can't bend down to pick up anything off the floor. When I was first diagnosed with PMR, it was after I woke up and was in so much pain, I couldn't get out of bed, nor walk unassisted and my husband had to dress me so we could go to emergency. It's been 3 months now and (thank God) I haven't had a fare up in weeks. I'm slowly trying to decrease my daily dosage with the help of my doctor. I want to be optimistic but I know this will take time and that I may have to deal with it for years to come. But never give up!

Hi @23amy, I had PMR then GCA, not diagnosed for a year. With PMR, I had pain on a scale of 12 out of 10 and stiiffness from the neck down. I felt like the Tin Man in the Wizard of Oz. I lost my appetite and had extreme fatigue. The backs of my knees were inredibly stiff and no amount of exercise helped. If I could manage to use a foam roller, I got some tingling.
With GCA, I had a sore scalp, shooting short pains from my ear to my nose, an itchy torso and dry cough, no appetite, extreme fatigue, and three incidents of visual disturbance. I also had gagging attacks for a while.
Ugh, no fun at all, I consider it the experience of a lifetime.