Where do I go next?
I recently sent in application for Minnesota Mayo Clinic. Today I received a letter saying I was denied. I’m so completely exhausted and sad. I thought maybe Mayo Clinic could help me but now where do I go next?
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I've received two of those denials. I don't know where to go either. I recently had to go from using a cane to using a walker. All any of the doctors I've seen say is "physical therapy, physical therapy, physical therapy. I've done that off and on for 30 years. I think I'm just too old for the doctors to waste their time on.
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1 ReactionHey, I'm so sorry. That is quite a disappointment. May I ask how long you have had fibro and at what age it began? If that's too personal, I understand. I'm asking because it began for me in my 30s and I'm 74 now.
It presents differently in some people, but for me, I was exhausted. I could not sleep, and it felt like I had the flu. Sometimes a rheumatologist can help. That was the specialist I started with because I was told I had RA. I can tell you some things that have helped me if you are interested. I'm sure others in here could and would do the same.
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2 ReactionsI was diagnosed in 1991 at the age of 44. I've been seeing a rheumatologist for many years. My problem is that I can't tolerate Cymbalta or other meds normally prescribed for fibro. My pharmacist told me that I don't metabolize meds rapidly enough so I get objectionable side effects. I was also told to go to PT for that but I don't think many physical therapists understand fibro. What has worked for you?
Did you try calling the clinic.
Ask to set up appointment and see what you find out.
call neurologists till u find one that knows F. I had one who was a sleep specialist (cpap user) but he went into private practice .
@bunstuffer There are many things I cannot tolerate either. I tried massage therapy. I would end up coming home in such pain I would be in tears. So I nixed that. My doctors wanted me on antidepressants. None of those work, and most doctors see that on my chart and think I have emotional problems. I have pain problems. Chronic pain can be a cause of depression, but I don't want my doctors to look at me from a mental disability. It is true antidepressants can work for some people, not me. Two things have helped me the most, sleep medication in low dose and exercise. I had to start slowly (in my late 40s) but was in my best shape ever at 51. I started with stretching and floor exercises, then fast walking every day. I also pray while walking, so it has a meditational element. Lastly, because I was left with extreme pain from a cancer operation recently, my heating pad has become my best friend. A month ago I added acupuncture. It has helped ALOT. I had to do self talk to get through all of these steps with much prayer. I know it looks like alot, but these things become a habit when you see the benefits. (At least for me) Start slowly. You are only competing with the pain, no one else. It's personal.
I have recently been diagnosed with Chronic Fatigue syndrome. But I suspect it was just a way to dump a diagnosis on me since no one can figure it out. I've seen specialists that have not found a reason for my issues and this new doctor ran my "usual" labs, did include Lyme disease. Found nothing and didn't go farther than to say it must be CF. Offered me a medication that "might" give me more energy! MIGHT!!! I am desperate to find someone that will really! Look into things. I've read on several sites about CF and don't fit all the criteria for CF and this has been going on for years. ANYONE HAVE CF and what specialists would you see? I've been to cardiology, rheumatology, pulmonary and a PCP or two? Why doesn't Mayo have a specific CF group? Why is is lumped in with Fibromyalgia?