Where are all the people on Active Surveillance (AS)?

Posted by ozelli @ozelli, Oct 13, 2025

I presume there are some but wonder if there are any lurkers who have been on AS for at least a few years?

I ask this because when I first had elevated PSA back in 2017 I went on a message board (not sure if it was this one, probably wasn’t) and felt a little pressured by people to get a biopsy asap (PSA was 5.75 at the time). Consequently while I still did some research, I avoided the message board scene for quite a while after that.

At that time, what I was really looking for was a dedicated message board for AS. Needed that rush of confirmation bias!
Still unsure if one exists…

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Jeff Marchi | @jeffmarc | Jul 24 11:42am

A friend of ours had a huge prostate and a PSA of 50 for a long time. He had multiple biopsies and they never found anything. He died of a completely different cancer.

Some people with large prostate get high PSA’s with it meaning nothing.