When to start vs delay prescription meds for osteoporosis
I would like to hear comments especially from those who may have waited to start prescription meds and see if you're glad you waited. I know everyone's reasons and circumstances likely differ widely. I'm 70 years old. I've had bone density scans every 2 years for at least 5 years and all show numbers for osteopenia. My worst T-score is -2.3 in my left hip. Last scan was March 2025. But each scan shows some worsening in numbers. My PCP has always just sent a letter saying I'm at moderate risk for fractures and to take my calcium and Vitamin D. That's it. But I finally looked at all of the scans over the years again and realized that I need to get proactive.
Back in May, I tried to get an appointment to an endocrinologist, and restricted myself to a female doc that wasn't an hour's drive away, I could only get in to see someone Dec. 1, so I made the appointment. But then I found a PA in an orthopedic surgeon's office who was a certified bone densitometrist and I could get in in July, so I also booked an appointment with her and saw her mid-July. She asked if I'd ever had a fracture and I said I thought I'd broken a rib when I fell power walking about 4 years ago, but I never saw a doctor about it. She said that fracture would put me in the osteoporosis stage even though my numbers don't show it. She also said that resistance training and other exercises for bone strengthening only improve bone density about 2% and while she said it's good to do the exercises, she said that medication was what I needed. She gave me 3 possible meds to consider, Fosamax, Reclast or Tymlos. My issue is that I am a full time sole caregiver for my husband who has terminal cancer and needs help. I take him to numerous medical appointments at MD Anderson. I help him with bathing, meals, meds, dressing, etc. I'm afraid of the side effects of the meds, and even though I know not everyone gets them, I am concerned that if I was unlucky to get side effects, then I may not be able to help my husband sufficiently, especially if I were to suffer any prolonged time with painful side effects. I don't know if I want to take that chance and not be able to take care of him. He has declined enough that I really wonder if he'll have another year left. He's lost 50 pounds in the past year. He's dependent on a walker and the chemo has caused heart failure. So I'm leaning toward not doing any meds and asking the endocrinologist that I will see Dec. 1 to get me a PT order to do resistance training and weight lifting at least twice a week to make sure I'm using proper form and staying safe. I don't know how long Medicare would cover something like that, but it would be less expensive than going with a personal trainer and who may not be experienced working with people with osteoporosis. I'd recently had PT on me knee for a bone spur and after going twice/week for 4 weeks, my cost was only $29.29. In the meantime, I try to go to the gym twice/week and do the machines for resistance training and use the treadmill.
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@ipg , Thanks, but no, she had cancer. I miss her 🙂
@jersie , The jaw Osteonecrosis was after years on Fosamax, a bisphosphonate drug.
Anabolic drugs like Tymlos and Forteo don't show that same risk of osteonecrosis.
I'm on Tymlos- I feel the benefits outweigh the risks. I've gone from severe OP to osteopenia in 2 years and 7 months, the first 19 months on exercise and nutrition alone.
@boneoptimist
I understand. And we always will
Does MRONJ come on suddenly? I have chronic teeth pain. Poor teeth. Wear a night guard. Dr said I need to go to dentist every 4-6 mos. What happens in between?
@ipg
I chose Tymlos mainly because I travel a lot and it doesn't need to be refrigerated. That said in the summer it was hot and I did use a travel thermos. Afterward, my hope is to maintain my gains with hrt. I started it 1 month before my Tymlos. I'm currently on month 9 and will do two years as long as I'm still making gains. So far I've had a strong response.
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1 Reaction@lbrown742 I will ask either the PA I've already seen or the endocrinologist I will first see Dec. 1 about submitting pre-authorization for PT for resistance training and weight training due to osteoporosis and see what Medicare will come back with. How much weight are you lifting twice/week now? And is that done with a barbell and weights or not? I haven't started anything with a barbell as I don't have a clue on proper form or how to safely work up on weight. I need to do the research.
I'm using 8lb free weights and I have a bench and lift just 16lbs. I was doing the liftmore protocol, which you can read about. Unfortunately, for me it was too much weight. The original study only used people who had osteopena and no previous fractures. I had a wrist fracture and 2 foot stress fractures prior to starting the program. Margaret Martin (I think that's her name) has beginner videos for weights. Check her out on YouTube.
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1 Reaction@lbrown742
Good for you
What HRT are you on. I am 70 years old. 3 drs said no
Any side effects to Tymlos ? You hear so much!
Thanks
I'm using .025 patch and 100 mg progesterone. I only have an elevated heart rate for an hour or so after the injection. It's been easy for me.
@ipg , I don't know the answer to that, sorry.
FWIW, I have seen comments here that patients on Tymlos were told by their Doctors that it was a good time to do dental work because of the increase of BMD and rapid healing.
@lbrown742
Her website is melioguide.com