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What Type of Doctor Diagnoses CRPS/Resource re: Treatment
Two Sundays ago, I went to the ER because my right knee, lower right leg, ankle and foot swelled up like a club. I was in so much pain that I was unable to walk. At the ER, the focus was on ruling out a blood clot.
Last night, my left knee and foot swelled up again, and the pain (and my husband's pain) kept me up most of the night. This morning, I read the post by @songfamily2025 about CRPS, which I had never heard or read about. I looked up CRPS and noticed that I have most of the symptoms of that syndrome but have not yet been diagnosed. What specialist do I need to see?
I am so sorry for all of you who have been diagnosed with CRPS and who have been unable to find a solution to make your pain tolerable.
(I elevated my leg all night with pillows and moved an ice pack around to whichever part of my leg and foot was aching the most; and I alternated the use of the ice pack with the application of a heating pad. I also took several CBD capsules, which helped me sleep for short intervals.)
This morning, I found this website and want to share the link with those of you with CRPS:
https://pubmed.ncbi.nlm.nih.gov/
I haven't looked at any of the articles yet. Please let me know if the website is of any help to you. Hope so.
Blessings and best of luck to those of you who susffer from CRPS.
George's Wife
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georgescraftjr, A Neurologist or a Pain Clinic Doctor or Pain Clinic Specialist.
Praying for you. Blessings & Prayers....
@covidstinks2023 Yes, You are right, find a good neurologist who is specialized in CRPS. They have Budapest Rule to confirm whether you have this disorder or not. You may google it for more details.
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1 Reaction@georgescraftjr Hey there, I'm so deeply sorry to hear of all your suffering and pain struggles. Wish I could turn the intensity down for you ... good thing about crps is it can fluctuate, so everyday is somewhat different. I have pretty severe and widespread CRPS that developed after a traumatic surgery due to a nasty complication from a previous one, so I can truly empathize with your struggles. For me, it was primarily a pain specialist that I went to who recognized it right away, but also my neurologist - he had a big part in this and has supported/advocated for me fully to this day. CRPS is not talked about enough and often misdiagnosed. I have a bunch of links I can probably send you that I have saved (a lot are specific to certain "defections" per se), one being this one -
https://www.rsds.org
Please keep us posted and we will help you in any way that we can in your journey. You're not alone and you're not crazy - what your body is telling you is very real. It's getting others who have the power to help to see the red flags and take action. Thankfully, my pain Dr has CRPS himself, so it is very personal for him and he is passionate to help people. Best of luck to you!
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