What to expect with treatment of melanoma with metastasis?
My healthy 65 yo husband has malignant melanoma- had the big lesion removed 2 yrs ago. Clean PET scan, then 2 yrs later- Mets to lungs etc. Anyone want to share their experience?
What to prepare for?
I’m an RN with realistic expectations.
+ braf-stage 111C
Interested in more discussions like this? Go to the Melanoma & Skin Cancer Support Group.
Connect

I attend the same hospital
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1 ReactionSorry for the misunderstanding, this is in reply to your post:
“I am starting immunotherapy with opdivo and yervoy. Other medical names but this is the easiest to remember. It is only one day at a time. I am in Tampa, FL. The system is busy and overworked”
What type
I do not understand? Which system do you speak of? What does that mean?
We are in Cape Coral, which system do you speak of? We will be going to Moffit next month for a 2nd opinion.
I am starting immunotherapy with opdivo and yervoy. Other medical names but this is the easiest to remember. It is only one day at a time. I am in Tampa, FL. The system is busy and overworked
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2 ReactionsOh thank you. Sorry to hear you have no one in your corner. Praying for your strength and healing.
What treatment are you doing?
This is all new. Haven’t even seen a MD since news
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1 ReactionRecurrence. Mets to bones. Lung- primary lesion on abdomen. For 2 yrs clean scans lymph node neg
All new CT & PET Mets.
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2 ReactionsHe is lucky with you in his corner. He should be very greatful and thankful. I have no one with the same melanoma.
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1 Reaction@rblegend50 Please let me echo the welcome from @becsbuddy, to Mayo Clinic Connect.
I had a malignant melanoma removed in late 2008, on my right forearm. A beautiful 32 stitch scar from the flap surgery done. Since then I have had many squamous cell skin cancer surgeries, and some basal cell surgeries. No recurrence of the melanoma.
Have they indicated a stage yet of the new mets? Any lymph node screening? Where was his first melanoma removed from? Did they do any check to nearby lymph nodes?
Ginger
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2 ReactionsA little more discussion here: https://connect.mayoclinic.org/discussion/metastatic-melanoma/?pg=1#comment-1075615
Check into the Tumor Infiltrating Lymphocytes treatment.
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