What to do?

Posted by whiteswan @whiteswan, Jul 18 5:00pm

May be somebody can help me with an advice.
Osteoporosis, Prolia 10 years, alendronate ( can not tolerate it because of problems with intestine) ,Reclast twice, it does not work for me, then Forteo, about $700 and I can not tolerate it. Chronic every minute headache, chronic insomnia, Tymlos is known for insomnia and headache too, to buy I need to pay about $900. It is not money, I am not rich , but with fracture I would pay more, it is insomnia every night for me.
what to do ?

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walkesu | @walkesu | Jul 19 8:09am

Im sorry that you are having these difficulties. For what it’s worth, I’ve used Tymlos 3 months and have had no headaches and no insomnia. Sending you wishes for relief.

2121 | @leslie2121 | Jul 19 10:04am

I started taking it first thing in the morning which helped with insomnia.

summera1 | @summera1 | Jul 19 11:04am

I got bad headaches on Tymlos. I went down to 4 clicks (half dose) and headaches went away in 2 weeks. When I try to go to more clicks I get headaches. I think it is best to take two hours before bedtime, because if I lay down too soon my heart races and I can't sleep. I react to almost all meds.

babs10 | @babs10 | Jul 19 10:59pm

Are you saying $900 total or per month?

whiteswan | @whiteswan | Jul 27 3:32pm

In reply to @babs10 "Are you saying $900 total or per month?" + (show)

@babs10 per month and inspire site people wrote that they had insomnia and it was the end of treatment with tymlos.

babs10 | @babs10 | Jul 27 6:42pm

In reply to @whiteswan "@babs10 per month and inspire site people wrote that they had insomnia and it was the..." + (show)

@whiteswan, Ugh, how unfortunate x 2.

Re: the cost, there is a $2100 cap on medications and after that you pay nothing (but that doesn't help the insomnia or headache!)

whiteswan | @whiteswan | Jul 28 9:27am

In reply to @babs10 "@whiteswan, Ugh, how unfortunate x 2. Re: the cost, there is a $2100 cap on medications..." + (show)

@babs10Thank you. It is not money. It is my ability do not tolerate all medicines. My endocrinologist told me that may be I will return to Prolia because of this but I do not want. It was so difficult to go away from Prolia and Prolia did not work for me in the end of 10 years.

babs10 | @babs10 | 6 days ago

In reply to @whiteswan "@babs10Thank you. It is not money. It is my ability do not tolerate all medicines. My..." + (show)

@whiteswan, I get it. My TBA score came back as "degraded" so I really need to give careful thought to my next steps. I don't want to take ANYTHING for so many reasons, but the side effects from fracturing is overwhelmingly scary to me and that will force the issue.

summera1 | @summera1 | 3 days ago

If you have drug coverage through work, not Medicare, ask if they have a specialty pharmacy program. If so , your cost may be zero. This is for high cost drugs, not income dependent.