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What symptoms are the worst for you with Behçet's? What helps?
I have so far been diagnosed with Becehts disease which is a rare autoimmune disorder that my doctors are having a hard time finding a medication to relieve severe symptoms. I have tried nearly every medication on the market I am now taking Acterma injections however I still have symptoms. I wondering what are the worst symptoms you suffer from if you have been diagnosed with bechets and what medication has helped you the most?
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Treatment
-Behçet's disease
https://www.nhs.uk/conditions/behcets-disease/treatment/
Behcet disease
https://www.mayoclinic.org/diseases-conditions/behcet-disease/diagnosis-treatment/drc-20351331
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2 ReactionsWelcome, @aim4nopain. I'm tagging a few members like @richardrr @gonnadoit @spankytwo2 @jackie30 @mel66, who all have experience with Behcet's to reply to your question about symptoms.
Here are a few discussions you may also be interested in:
- Behcet's disease: Would like to connect with others https://connect.mayoclinic.org/discussion/behects-disease/
- Behcet's Syndrome: What treatment has worked for you? https://connect.mayoclinic.org/discussion/bechets/
@aim4nopain, what symptoms are you finding challenging? What helps you find relief?
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1 ReactionHi,
The most difficult symptoms are joint pain, and recurrent pericarditis.
The only medication that seems to work for me is Prednisolone.