What medications for TBI symptoms work for you?

I had a craniotomy may 2014. I was tapered off clonopin in 2018. I do take lamotrigine ER 100mg for seizure prevention. I also take escitalpram 5mg for ptsd lisinopril 10mg and levothyroxine 150mcg. If I get dizzy I need to hydrate rest ge out of the heat. I don't take any meds for TBI. Have you discussed your symptoms and your need to take meds for a TBI with a doctor?

Welcome to Mayo Clinic Connect, @justaskjaketbi. It undoubtedly can be hard to find a new provider when your doctor retires. But it would be great to have a new doctor who would review your medical records and discuss treatment options with you.

What symptoms of TBI are you dealing with now?

I got my TBI in 2015. I was prescribed 90 mg Adderall taking 30 mg 3 x a day as well as xanax than switched to Klonopin.

It took along time to find meds that worked that. They finally worked for over a decade until I went to jail and my doctor retired .

Now I can't find a doctor to prescribe me my normal does of 30mg Adderall 3x a day with my Klonopin 3 x a day .

Anyone that knows a doctor in Michigan that will help me get back on track please help me.

Oppps… no pain within me - thankfully

This is wow for some people having or had a TBI… I get drugs 3 times a day and stopping my anti-seizure. Did I lose my memory as a 50s year old? Yes, that happened 12 yearsago from an accident. I lost 80% of my memory and=d understanding.

I didn't use any medicines following my TBI 31 years ago. I did some meditation, took naps when tired, and tried to destress as much as I could. While I was writing my thesis at home I played "An affair to remember" to block out noise from neighbors. The movie is interesting in the beginning and end, so the middle was mostly grey noise (back before there were grey noise machines and such). Lots of reading games, and otherwise engaging one's brain are good for rewiring.

The only meds I use is Tylenol at night. This combined with my evening prayers and the Alexa sleep app, allow me to clear my mind and relax into sleep.

Hi, @westd - I wanted to check back in with you to see if you have any updates on what medications have worked for you in regards to traumatic brain injury (TBI) since you posted a question about this topic.

I also thought @lolabelle1 @msa1396 @badbenny @m2murphy256 @kayabbott @lanieg might have input on what medications they may have taken that have helped with TBI and related symptoms. @hevykevy, you mentioned acetaminophen (Tylenol) some time back in this discussion. Do you still use it? Are there any other medications that have been useful to you?

westd Are you still taking clonazepam (Klonopin)? Are there additional medications that have helped you with TBI symptoms?

I, too, am fascinated by the weirdness of empty things that were formerly busy. The parking lot at my local mall vacant- day after day. The lack of traffic and traffic sounds. No airplanes intruding on phone calls. It goes on and on. One day, I’ll be able to get those 2 doctors talking.

Yeah CV-19 has put us all on “hold”. I went to doctors to sign insurance information the place was empty, feeling like one of those post apocalyptic movies is going on its different to see people wearing masks, stockless grocery stores, and I think I need to stop by watching tv for a while!