Looking for advice for best diet for kidney disease

Posted by lilliesmom @lilliesmom, 5 days ago

I am recently diagnosed with stage 3B kidney disease and am trying to compile a comprehensive list of foods to eat and to avoid. I’m finding some conflicting information. Also want to know what the minerals in the food are to limit overindulgence.

Interested in more discussions like this? Go to the Kidney & Bladder Support Group.

I know I personally have been limited to the following with a 3a diagnosed
2000mg Sodium
2000mg Potassium
2000mg Phosphorus
The food values of each the sod and pot are listed on every productyou buy.
However Phosphorus is not. Download a Phoshorus food guide from internet, very benificial
I am also limited to a .6-.8 Grams of Protien base on m weight in Kilos
No Enriched Foods/ No Red meat...These are ok, Eggs/white fish / chicken/ veggie/ based on your situation
For real help reciepes I use the The Food Doc for KD Dr Shusterman (Amazon)
I Keep a daily spredsheet of what I eat daily and my GFR is stable at 35 for past 1.5 years
I hope this helps a little bit. Good Luck
I am now researching Stem Cells
BTW There are many You Tube Videos on CKD that will learn a lot of what to eat and not to eat....that where i got most of my info on what and what not to eat and the reasons why. Your Doctor won't tell you!

REPLY

@lilliesmom Welcome to Mayo Clinic Connect!

As you read through the threads list on the kidney and bladder support group list, you see there are several discussions about diet, already. We kidney disease patients have found that diet is one of the most important things we can do and help ourselves! Many of us have additional health concerns, besides just chronic kidney disease, so what we eat may have to take that in to account.

Here are a few links to help you get started:
Renal Support Network: https://www.rsnhope.org/nutrition-data-information-for-the-kidney-diet/
National Kidney Foundation: https://www.kidney.org/nutrition
Renal Dietician: https://community.eatrightpro.org/rpg/about-renal-dietitians/find-renal-dietitian

As always, what may work for someone else, may not be a great benefit to you. Read what others say works for them. I hope this gives you some information and ideas.
Ginger

REPLY
Profile picture for georgecjh @georgecjh

I know I personally have been limited to the following with a 3a diagnosed
2000mg Sodium
2000mg Potassium
2000mg Phosphorus
The food values of each the sod and pot are listed on every productyou buy.
However Phosphorus is not. Download a Phoshorus food guide from internet, very benificial
I am also limited to a .6-.8 Grams of Protien base on m weight in Kilos
No Enriched Foods/ No Red meat...These are ok, Eggs/white fish / chicken/ veggie/ based on your situation
For real help reciepes I use the The Food Doc for KD Dr Shusterman (Amazon)
I Keep a daily spredsheet of what I eat daily and my GFR is stable at 35 for past 1.5 years
I hope this helps a little bit. Good Luck
I am now researching Stem Cells
BTW There are many You Tube Videos on CKD that will learn a lot of what to eat and not to eat....that where i got most of my info on what and what not to eat and the reasons why. Your Doctor won't tell you!

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If you go to the Kidney Foundation there are some conflicts. Some sites are more comprehensive but there’s also conflicting info. Example: one site says white fish and another includes salmon. One site says spinach and another doesn’t mention it. If you find some good info on stem cells, please pass it on.
Thank you so much for replying to my post. I really appreciate it!

REPLY

Many doctors don’t have a lot of training in nutrition. (That doesn’t necessarily mean they won’t help.) My doctor says I need to “eat for the labs”. By this he means the things that he monitors in my kidney function labs (calcium, oxalates, phosphorus, potassium, protein, sodium...). This may differ from person to person. So some patients need to be cautious of some things that others don’t have to be. My doctor also referred me to a renal dietician. These people can consider your specific situation and help customize a plan with you based on your needs, likes & dislikes. They can provide lists of foods and beverages that are ok for you and things that should be avoided or limited. Not everyone is the same. There is no such thing as “one size fits all”. That is why general information can seem conflicting.

REPLY
Profile picture for Cheryl, Volunteer Mentor @cehunt57

Many doctors don’t have a lot of training in nutrition. (That doesn’t necessarily mean they won’t help.) My doctor says I need to “eat for the labs”. By this he means the things that he monitors in my kidney function labs (calcium, oxalates, phosphorus, potassium, protein, sodium...). This may differ from person to person. So some patients need to be cautious of some things that others don’t have to be. My doctor also referred me to a renal dietician. These people can consider your specific situation and help customize a plan with you based on your needs, likes & dislikes. They can provide lists of foods and beverages that are ok for you and things that should be avoided or limited. Not everyone is the same. There is no such thing as “one size fits all”. That is why general information can seem conflicting.

Jump to this post

Thank you so much. I’ll try to find a renal dietitian near me.
It’s reassuring to know other people have the same problem and look for advise.
God bless you.

REPLY
Profile picture for Ginger, Volunteer Mentor @gingerw

@lilliesmom Welcome to Mayo Clinic Connect!

As you read through the threads list on the kidney and bladder support group list, you see there are several discussions about diet, already. We kidney disease patients have found that diet is one of the most important things we can do and help ourselves! Many of us have additional health concerns, besides just chronic kidney disease, so what we eat may have to take that in to account.

Here are a few links to help you get started:
Renal Support Network: https://www.rsnhope.org/nutrition-data-information-for-the-kidney-diet/
National Kidney Foundation: https://www.kidney.org/nutrition
Renal Dietician: https://community.eatrightpro.org/rpg/about-renal-dietitians/find-renal-dietitian

As always, what may work for someone else, may not be a great benefit to you. Read what others say works for them. I hope this gives you some information and ideas.
Ginger

Jump to this post

Thank you so very much for the referrals. They are very good sites and I’m already exploring answers.
I really appreciate your help.
God bless you

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