what is like to experience neuropathy as we age

Posted by nekcarolyn @nekcarolyn, 2 days ago

recently it seems my neuropathy is getting worse. is that possible at 77?
the numbness seems to extending up my legs from my feet and ankles. A friend mentioned the same sensation.
I am starting to wonder how I will be in 15+ yrs given good health otherwise.

thanks

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I'm very happy to have found this forum, to talk with fellow sufferers, who have nothing to sell. I've tried a multitude of supplements, some that seemed to help for awhile before returning all my symptoms. I've had the burning numbness for many years, exacerbated by colder temperatures. People don't seem to mention that, does cold weather make it unbearable? I'm now 72 hard lived years old, and the last 2 years have given me a symptom that others don't mention. Tingling and numbness have moved up to one side of my neck. It is definitely temperature reactive, I must wear some sort of scarf or protection for half the year. Even in summer while suffering heat, a fan can cause this to flare up. I've not heard of anything like this from others, have you? I'll be following closer now that I've found you. I wish a

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I'm very happy to have found this forum, to talk with fellow sufferers, who have nothing to sell. I've tried a multitude of supplements, some that seemed to help for awhile before returning all my symptoms. I've had the burning numbness for many years, exacerbated by colder temperatures. People don't seem to mention that, does cold weather make it unbearable? I'm now 72 hard lived years old, and the last 2 years have given me a symptom that others don't mention. Tingling and numbness have moved up to one side of my neck. It is definitely temperature reactive, I must wear some sort of scarf or protection for half the year. Even in summer while suffering heat, a fan can cause this to flare up. I've not heard of anything like this from others, have you? I'll be following closer now that I've found you. I wish all of you the best and a cure to go with it. Thank you for everything.

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I have the same experience only it took less than a year.

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@njed

I have to agree with Jake (@jakedduck1) regarding worrying about the future. There is no doubt in my mind that PN has a mind of its own and progression has a different pattern for everyone. I do my best to remain active which at times is not easy. I don't push it on bad days, and I'll be more active on good days. I feel we should not worry about things we can hardly control, like PN. Try to remain active, keep moving and do the best you can it might even slow down progression.

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good advice,
thanks
I will think on this

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hi thanks for your thoughts.
recently. I have know 2 things. when I wear my glasses, bifocals, I can walk better without. I think they restrict my peripheral vision and so provide less info to my brain about e and how to walk. Make sense. try it.

also, dancing. I love to dance and did for years. sometimes I will step to music around the house, kitchen usually. this forces my legs/feet to respond to my brain when I hear music. make sense? try that.
its a day by day thing.
carolyn

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@melfimike

foot masage machine does this help? What brand? I have pacemaker can I use electrical machine?? Thanks

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A foot massager will not affect your pacemaker. I've had a pacemaker since 2010 and really, there is very little that interferes with a pacemaker.
I use a foot massager regularly and I can only use it on the lowest setting. I do not have pain with my neuropathy, numbness and balance are my complaints. I use a massager to keep the blood flowing.

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