what is like to experience neuropathy as we age

I'm very happy to have found this forum, to talk with fellow sufferers, who have nothing to sell. I've tried a multitude of supplements, some that seemed to help for awhile before returning all my symptoms. I've had the burning numbness for many years, exacerbated by colder temperatures. People don't seem to mention that, does cold weather make it unbearable? I'm now 72 hard lived years old, and the last 2 years have given me a symptom that others don't mention. Tingling and numbness have moved up to one side of my neck. It is definitely temperature reactive, I must wear some sort of scarf or protection for half the year. Even in summer while suffering heat, a fan can cause this to flare up. I've not heard of anything like this from others, have you? I'll be following closer now that I've found you. I wish a

I'm very happy to have found this forum, to talk with fellow sufferers, who have nothing to sell. I've tried a multitude of supplements, some that seemed to help for awhile before returning all my symptoms. I've had the burning numbness for many years, exacerbated by colder temperatures. People don't seem to mention that, does cold weather make it unbearable? I'm now 72 hard lived years old, and the last 2 years have given me a symptom that others don't mention. Tingling and numbness have moved up to one side of my neck. It is definitely temperature reactive, I must wear some sort of scarf or protection for half the year. Even in summer while suffering heat, a fan can cause this to flare up. I've not heard of anything like this from others, have you? I'll be following closer now that I've found you. I wish all of you the best and a cure to go with it. Thank you for everything.

I have the same experience only it took less than a year.

good advice,
thanks
I will think on this

hi thanks for your thoughts.
recently. I have know 2 things. when I wear my glasses, bifocals, I can walk better without. I think they restrict my peripheral vision and so provide less info to my brain about e and how to walk. Make sense. try it.

also, dancing. I love to dance and did for years. sometimes I will step to music around the house, kitchen usually. this forces my legs/feet to respond to my brain when I hear music. make sense? try that.
its a day by day thing.
carolyn

A foot massager will not affect your pacemaker. I've had a pacemaker since 2010 and really, there is very little that interferes with a pacemaker.
I use a foot massager regularly and I can only use it on the lowest setting. I do not have pain with my neuropathy, numbness and balance are my complaints. I use a massager to keep the blood flowing.

I am using tart cherry juice which seems to help with my hot feel 2Tbs in an 8oz gas’s of water. I ordered it on Amazon.

I am glad you have found something that is helpful. I will have to give tart cherry juice a try.

I was diagnosed with axonal PN two years ago.
No pain, luckily, as it affects the nerves but not the nerve sheath.
Balance not so good, walking is a bit wavy on rough ground, and if I'm standing on a stool for instance I wobble about.
I have the 'tight socks' feeling, more so some days than others. Some night cramps which were quite bad, worse on nights when I've had alcohol although I'm not a heavy drinker. Helped by drinking half a glass of water before bed.
My legs/feet have reduced feeling below the knee.
It does not seem to be progressing upwards thank goodness.
The specialist says it may intensify but not necessarily progress upwards.
I think it important to do some regular exercises to preserve the strength in one's legs. Squats, especially.
What does the future hold? I suspect that none of us, nor our specialists, can really know.

I have had peripheral neuropathy since 2017. I'm not sure if it is progressing or these are flares. From a few inches above my ankles to my feet I have terrible burning pain which is worse at night. It feels like my skin has hot oil poured on it. Does anyone else have this and if so what helps.