What exactly happens before, during and after a Craniotomy?
Can someone explain to me what exactly happens when you have a craniotomy to have a meningioma removed. I am very nervous and anxious and having doubts as to whether to have one done to remove my meningioma.
Thankss
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kdog:
Thank you very much. But the doctors are of no assistance as it is just a business for them.
They have absolutely no time or interest.
That is one reason I have cancelled my Watchman implant also.
Nowadays, one does not even meet the doctor. One goes straight in to surgery without having questions answered, or any interaction with anyone.
It is all about the money.
I will possibly go for a second opinion.
My neurosurgeon, who has been practicing for decades, laughed at me as he stated that he thought I was joking about all of my strange symptoms.
He stated that he had never had such complaints by anyone:
hollow feeling in forehead,
bones cracking, total numbness in head.
I have difficulty walking, loss of balance.
Thank you for your response.
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1 ReactionYup, had first 4 treatments last week, only 26 to go. No bad effects as yet. Fortunately the treatment center is nearby so I can ride my bike there to maintain fitness during the treatment.
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3 ReactionsHi - how are you? Did you end up getting radiation?
Welcome to the group.
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2 ReactionsIf you had the surgery on April 30 it’s barely been 2 months. You’re still healing. I just had an MRI 5 months post surgery and it shows the skull healed but there are also some “changes”. There is some scarring around the location of the former tumor that the radiologist called encephalomalacia and gliosis. It’s pretty common after a craniotomy. Also the entire top of my head is still numb and the incision itches. They tell me it will subside over time. I agree that your doctors should be more on the ball, you should keep on them until they respond. Are you doing alright aside from the healing issues?
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4 ReactionsGreetings everyone:
I have searched throughout the blogs, chats, and other, and cannot find anything pertaining to my issue:
I had my frontal lobe craniotomy on 3 0 April 2025.
My right side of my head is numb, and the bones continue to crack and pop, even if I sneeze, cough, move my eyes too much, et cetera.
In addition, my right forehead feels as when one hits a watermelon -- just empty. I cannot wash my hair or touch the area as it is quite uncomfortable.
The CT scan shows that there is a change.
None of my doctors wish to assist in this matter.
Any responses, please.
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2 ReactionsDid you have oligodendroglioma?
i had a left convexity meningioma. Anderson is considered excellent' You want to see neurosurgeons not neurologists. Also, you dont want to see general oncologists. you want to see neuro-oncologists' Mayo has an excellent referral program-- its called alumni program. Ask the admin how to reference it. Best wishes
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2 ReactionsThats what i did. i wasnt ready and i waited another six months and had another MRI
Thank you so much for all those who have responded to my questions. I have decided to wait, not because I don't need the surgery, but because I don't want to have this done right now --bottom line. And the reason is just that I am afraid, I am here in a small south Texas town, so if I am going to have this done, then I want to go somewhere else, maybe Houston.
The size of my meningioma is 3.1 x 3 x 2.1 cm
Cerebral Parenchyma: well-defined extra-axial T2 heterogeneously hyperintense and T1 isointense lesion in the right anterior frontal convexity. The lesion extends into the parafalcine location and abuts the superior sagittal sinus.
I have no idea what some of these words mean, but I am learning as much as I can everyday. I am glad I found this site and I have been able to find so many answers. The 1st doctor (neurologist) told me back in 6-2024, that these things grow really slow it was at 2.7 cm. So I decided to see a surgeon; I had the second mri in march and these were the results. He recommend a surgery, and at first I said yes, but once I found out the real procedures and all the side effects that can happen, than I decided to try a second opinion. He said I could consider radiation; but this last Monday, the oncologist said he would not do it because radiation is only done to kill cancer cells and that the best thing to do is surgery.
Both doctors said the fact that I do not have any serious symptoms and the location; then I can wait for the surgery. I really really don't want to wait for this to grow and then the surgery will be harder, but I just don't want to go thru this right now. I want to see if I can travel to Houston or San Antonio and maybe there have the surgery. Again thank you so much for your time and information and I will continue to look for your posts. Some of your answers make me feel at ease, and I know that I have to go thru this eventually so for now I hope I can find a good doctor soon.
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