What does end stage lung cancer look like?

Posted by denise96 @denise96, Jan 18 3:08pm

My husband has stage iv lung cancer. He also suffers with advanced COPD. He took two chemo treatments and decided to quit taking them. He has been so sick ever since he started them which was Dec. 26 last year. HIs last one was January 2. He is dehydrated and weighs around 90 pounds, if that. Lately, all he has been doing is sleeping. He sleeps in his recliner. He slept all night and so far (it is 4:04 ET) he is still sleeping. I keep checking on him as his breathing is very shallow. He sleeps with his mouth wide open probably because he can't breathe with it shut. I don't know. But he reminds me of my aunt when she was dying. Her mouth was wide open and her eyes were open and just staring. His eyes are not open. I don't know if this a sign that the end is near or what. Hospice is supposed to contact me on Monday. I called the visiting nurse on friday and she said she would have them contact me. Maybe it is not time for hospice, but maybe it is. He is hardly eating anything and drinks very little if at all. I feel like I am just watching him die. It is frightening and scary to deal with this. I just don't know what to do or think. Any insight into this would be so appreciated. Thank you.

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Hi Denise,
It does sound like your husband may be dying. I'm not a doctor but I've seen people die. Perhaps you should call 911 but that's up to you. Do tell your husband that you love him. Think of it this way; If your husband dies, he will be up in Heaven with God and Jesus and out of pain. Be glad for that and pray to God to help you get through this difficult time. Denise, you will be reunited with your husband in Heaven eventually.
I will say a prayer for you.
PML

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@pml

Hi Denise,
It does sound like your husband may be dying. I'm not a doctor but I've seen people die. Perhaps you should call 911 but that's up to you. Do tell your husband that you love him. Think of it this way; If your husband dies, he will be up in Heaven with God and Jesus and out of pain. Be glad for that and pray to God to help you get through this difficult time. Denise, you will be reunited with your husband in Heaven eventually.
I will say a prayer for you.
PML

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Thank you so much for the comforting words. Last night when he finally woke up around midnight, he tried to get out of his recliner and he fell. I was in bed but I heard him and ran out to help him. He weighs next to nothing so I was able to help him up. His sister had bought him this new recliner thinking it would help but he has fallen out if it, tipped it over and went sideways in it with the chair. It is a swivel chair and rocks so when he tries to sit in it, it swivels around. I would never tell her, because she would feel so bad, but it is not a good chair for him. We have two other recliners but he doesn't like them either. When I got up this morning, he had made it into his bedroom. I did like it better when he slept in the chair as I could keep checking on him. I offered him something to eat last night but he said he wasn't hungry. I may be totally off base but I do feel like he is going to die soon. So I pray a lot.

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@denise96

Thank you so much for the comforting words. Last night when he finally woke up around midnight, he tried to get out of his recliner and he fell. I was in bed but I heard him and ran out to help him. He weighs next to nothing so I was able to help him up. His sister had bought him this new recliner thinking it would help but he has fallen out if it, tipped it over and went sideways in it with the chair. It is a swivel chair and rocks so when he tries to sit in it, it swivels around. I would never tell her, because she would feel so bad, but it is not a good chair for him. We have two other recliners but he doesn't like them either. When I got up this morning, he had made it into his bedroom. I did like it better when he slept in the chair as I could keep checking on him. I offered him something to eat last night but he said he wasn't hungry. I may be totally off base but I do feel like he is going to die soon. So I pray a lot.

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There are really good YouTube videos on end of life, & what happens when people are dying. I found these TED talks very helpful. Sadly, I found them after helping my Dad, & Sister at the end of life. I wish I would have seen them first.
This one in particular will help you, I think:


But all of these are really good:
TED Talks
Dr. Leslie Blackwell ~ Living, Dying, & the Problem with Hope https://youtu.be/KQEWc3LVfyc?si=y2iUX0mFl38-sOIp

Kathryn Mannix ~ What happens as we die? - https://youtu.be/v9f6twy70iM?si=ow0zoXsvF9q-cr1v

Ken Hillman ~ We’re Doing Dying All Wrong - https://youtu.be/gQVC-8WEB7s?si=qIRKXjFpMT8nU_qT

Robert Macauley ~ Dying Well - https://youtu.be/T5qKXKDLMco?si=gzh2-cMlPRd7ovM5

Heartfelt best wishes to you. Take care of yourself.

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@amyb5

There are really good YouTube videos on end of life, & what happens when people are dying. I found these TED talks very helpful. Sadly, I found them after helping my Dad, & Sister at the end of life. I wish I would have seen them first.
This one in particular will help you, I think:


But all of these are really good:
TED Talks
Dr. Leslie Blackwell ~ Living, Dying, & the Problem with Hope https://youtu.be/KQEWc3LVfyc?si=y2iUX0mFl38-sOIp

Kathryn Mannix ~ What happens as we die? - https://youtu.be/v9f6twy70iM?si=ow0zoXsvF9q-cr1v

Ken Hillman ~ We’re Doing Dying All Wrong - https://youtu.be/gQVC-8WEB7s?si=qIRKXjFpMT8nU_qT

Robert Macauley ~ Dying Well - https://youtu.be/T5qKXKDLMco?si=gzh2-cMlPRd7ovM5

Heartfelt best wishes to you. Take care of yourself.

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Thank you so much. I will be sure to watch them.

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@denise96

Thank you so much for the comforting words. Last night when he finally woke up around midnight, he tried to get out of his recliner and he fell. I was in bed but I heard him and ran out to help him. He weighs next to nothing so I was able to help him up. His sister had bought him this new recliner thinking it would help but he has fallen out if it, tipped it over and went sideways in it with the chair. It is a swivel chair and rocks so when he tries to sit in it, it swivels around. I would never tell her, because she would feel so bad, but it is not a good chair for him. We have two other recliners but he doesn't like them either. When I got up this morning, he had made it into his bedroom. I did like it better when he slept in the chair as I could keep checking on him. I offered him something to eat last night but he said he wasn't hungry. I may be totally off base but I do feel like he is going to die soon. So I pray a lot.

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Denise,
When my husband died last July he went through a lot of what your husband is going through now. He fell and had no appetite. But remember, it's God who decides when and if a person is going to die. We just wait and pray. I'm so glad that you are praying. Pray with your husband and tell him you love him. It helps both of you.

I understand about the recliner. Some people just can't tolerate them. I'm one of them. I fall out of them also or can't get the foot rest to go down so I have to try and crawl over it which doesn't work! My husband had one that swiveled too. He was fine with it but I could hardly sit in it without almost falling out. We are all different.

I wish you the best and will continue to pray for you and your husband.
PML

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Thinking of you @denise96. I hope you hear from hospice tomorrow. If they don't contact you, please reach out to them. They are usually wonderfully caring people with a good perspective on what the patient and family are ready for. I've previously watched the TED talk with Kathryn Mannix that @amyb5 recommended and found it enlightening. I hope your night goes well. Try to get some sleep.

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@lls8000

Thinking of you @denise96. I hope you hear from hospice tomorrow. If they don't contact you, please reach out to them. They are usually wonderfully caring people with a good perspective on what the patient and family are ready for. I've previously watched the TED talk with Kathryn Mannix that @amyb5 recommended and found it enlightening. I hope your night goes well. Try to get some sleep.

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Thank you. I did not sleep well last night because after he fell at 1:30 in the morning, I was afraid to sleep. But I finally did. Today he has been awake more and boy is he grouchy. I liked it better when he slept. He is mad at me because I took his cigarettes off of him because he would light them and then fall asleep. He burned a big hole in the afghan he is using. So when he wants one, I give it to him and sit in the room while he smokes it. He is really pissed at me. I said well you could be in hospital and you would not get to smoke at all. I finally had to leave the room I feel sorry but he started swearing at me and I walked out of the room until he calms down. What a road we all travel.

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@pml

Denise,
When my husband died last July he went through a lot of what your husband is going through now. He fell and had no appetite. But remember, it's God who decides when and if a person is going to die. We just wait and pray. I'm so glad that you are praying. Pray with your husband and tell him you love him. It helps both of you.

I understand about the recliner. Some people just can't tolerate them. I'm one of them. I fall out of them also or can't get the foot rest to go down so I have to try and crawl over it which doesn't work! My husband had one that swiveled too. He was fine with it but I could hardly sit in it without almost falling out. We are all different.

I wish you the best and will continue to pray for you and your husband.
PML

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Thank you so much. I greatly appreciate the prayers. Today my husband ate a grilled cheese sandwich. He has been more alert today than yesterday. He still falls asleep fast. I took his cigarettes from him and he is pissed at me. I happend to walk in the living room and he had lit one, fell asleep and it was burning a hole in the afghan he was using. So I give him one when he wants then I stay in the room while he smokes it. He looked at me and said "what are you looking at? Are you waiting for me to die?) I said no, I am watching to make sure you don't fall asleep and burn yourself or the house up. He is not happy with me. Guess I have a long road ahead of me. I liked it better when he was asleep.lol At least he wasn't bitching at me. 🙂

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@denise96

Thank you so much. I greatly appreciate the prayers. Today my husband ate a grilled cheese sandwich. He has been more alert today than yesterday. He still falls asleep fast. I took his cigarettes from him and he is pissed at me. I happend to walk in the living room and he had lit one, fell asleep and it was burning a hole in the afghan he was using. So I give him one when he wants then I stay in the room while he smokes it. He looked at me and said "what are you looking at? Are you waiting for me to die?) I said no, I am watching to make sure you don't fall asleep and burn yourself or the house up. He is not happy with me. Guess I have a long road ahead of me. I liked it better when he was asleep.lol At least he wasn't bitching at me. 🙂

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Hey Denise, so sorry about your husband and it's not easy I'm sure for you. Want you to know that I will keep you in my prayers. I have bile duct cancer but cannot take chemo pills too many side effects but husband handling ok for now just hoping cancer doesn't come back. I'm letting it up to God if it's his will. Wish I could have a cigarette quit 25 years ago but enjoyed them.

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@denise134

Hey Denise, so sorry about your husband and it's not easy I'm sure for you. Want you to know that I will keep you in my prayers. I have bile duct cancer but cannot take chemo pills too many side effects but husband handling ok for now just hoping cancer doesn't come back. I'm letting it up to God if it's his will. Wish I could have a cigarette quit 25 years ago but enjoyed them.

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Thank you for responding. How are you? Is your cancer in remission now? I hope it is. Are you able to walk around or get in the car to go someplace? I would not be able to get my husband in the car because his balance is really bad. He fell again this morning and when I tried to help him up, I fell also. I didn't get hurt but who knows about the next time. I can't afford to get hurt or sick because I am his only caregiver. The hospice nurse is coming over tomorrow to talk to us. I just told him that a visiting nurse was coming. He would pitch a fit if he knew they were from hospice. But he will find out tomorrow. Since I can't get him to a doctor unless I call an ambulance, I need someone to do house visits at least once a week. He is not an easy patient to deal with. He has never been easy to deal with all the years we have been married. It is worse now. But this too shall pass.

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