What are your experiences in the accuracy of the dexascans.?

Posted by janines @janines, Feb 22 2:29pm

I was diagnosed w osteopenia again after my second dexascan in October 2024. On November 7 2024 I fell and have a compression fx with 54% collapse and was diagnosed w severe osteoporosis. I just went to the endocrinologist this past week 2/16/2024 and she diagnosed me with severe osteoporosis. How can I follow up with a dexa scan if it’s not accurate? I’m starting on Tymlos as soon as it’s pre authorized. What do you think?
I’m 68 yo and just had the dexascans every 2 years. Just the 2 since Medicare will pay for that. My previous gyn never recommended a dexascan, nor my FP Dr.

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@katrina123

I question the dexa scans too because I had a dexa scan that showed osteopenia but while recovering from a knee replacement I pulled myself out of bed with most of the stress on my back and it caused an L3 fracture. Once that happened my doctor said that she thought I should consider that I have osteoporosis.

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I had a dexa scan in 2023, diagnosing me with severe osteoporosis. I learned about an echolight scan in late 2024 through conversations on the forum here. I scheduled a Echolight scan, and in January of 2025, I found that I did not have osteoporosis. There are 3 zones, green, yellow and red. Osteoporosis is the red zone, the yellow zone is osteopenia, and the green is where your bone is healthy. I found that I was in the green zone. I question the dexascan, and I did. I now have learned that the dexa scan was wrong. Get both if possible and compare. The Echolight scan shows the integrity of the bone and gives a much better synopsis of the bone and where the bone is at. I have heard, that the machines that do the dexascan can be off, in my case, it proved that I was not suffering from osteoporosis. The insurance did not cover the scan, but it was worth every penny!

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@janines DXAs are like a great many medical tests - they are both useful and imperfect. And like many medical tests they can have gross errors and require trained technicians to follow proper procedures to get the most accurate results. For most people, most of the time the scans seem to be roughly accurate and consistent and quite useful. I'm fortunate in that that has been the case for myself. I've had 7 scans over the past 6 years and they have all made sense and been consistent. I had consistent and disturbing bone loss year after year until I took Evenity for a year and then I had a huge improvement. My scans were consistent in revealing trends. They made sense.
For you to have fractured despite having a DXA that indicated osteopenia does not at all invalidate your DXA scans. I'm sorry that you fractured. Thinking that your fracture invalidates DXAs actually shows how we are not educated in what DXAs are and how big a part of the risk of fracturing they cover. There are multiple factors involved in how resistant a person is to fracturing, bone density is a huge one and DXAs measure that pretty well (though not perfectly). But there are many factors involved in the quality of the bone besides the density. TBS processing of the DXA scans can give an indication of that for the spine but unfortunately TBS is not widely available, though it would be easy for them to be done with each scan. REMS may turn out to be a valuable tool for measuring bone quality but it's certainly not accepted by most doctors at this point. I would add that at this point in time many people can look back over years of DXAs scans and see that they made sense (or sometimes not). REMS has not been around long enough to have that track record. And who knows if either TBS or REMS or both cover all of the possible important aspects of "bone quality"? I strongly suspect that even with both of those there are other important factors being missed in the bone quality category. And then there's the core muscles supporting the spine that probably play an important role. And then there is your balance and coordination and how often you fall and how well you fall and on and on.
So, the DXA score helps and can be very useful but it is not perfect and it is giving information about one aspect of your likelihood of fracturing. It does not, can not, and isn't designed to, give you information about all the factors involved in fracturing

To get the most useful responses possible for your situation include your actual DXA numbers. The terms osteopenia and osteoporosis cover pretty wide ranges and just are not precise enough.

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@awfultruth

@janines DXAs are like a great many medical tests - they are both useful and imperfect. And like many medical tests they can have gross errors and require trained technicians to follow proper procedures to get the most accurate results. For most people, most of the time the scans seem to be roughly accurate and consistent and quite useful. I'm fortunate in that that has been the case for myself. I've had 7 scans over the past 6 years and they have all made sense and been consistent. I had consistent and disturbing bone loss year after year until I took Evenity for a year and then I had a huge improvement. My scans were consistent in revealing trends. They made sense.
For you to have fractured despite having a DXA that indicated osteopenia does not at all invalidate your DXA scans. I'm sorry that you fractured. Thinking that your fracture invalidates DXAs actually shows how we are not educated in what DXAs are and how big a part of the risk of fracturing they cover. There are multiple factors involved in how resistant a person is to fracturing, bone density is a huge one and DXAs measure that pretty well (though not perfectly). But there are many factors involved in the quality of the bone besides the density. TBS processing of the DXA scans can give an indication of that for the spine but unfortunately TBS is not widely available, though it would be easy for them to be done with each scan. REMS may turn out to be a valuable tool for measuring bone quality but it's certainly not accepted by most doctors at this point. I would add that at this point in time many people can look back over years of DXAs scans and see that they made sense (or sometimes not). REMS has not been around long enough to have that track record. And who knows if either TBS or REMS or both cover all of the possible important aspects of "bone quality"? I strongly suspect that even with both of those there are other important factors being missed in the bone quality category. And then there's the core muscles supporting the spine that probably play an important role. And then there is your balance and coordination and how often you fall and how well you fall and on and on.
So, the DXA score helps and can be very useful but it is not perfect and it is giving information about one aspect of your likelihood of fracturing. It does not, can not, and isn't designed to, give you information about all the factors involved in fracturing

To get the most useful responses possible for your situation include your actual DXA numbers. The terms osteopenia and osteoporosis cover pretty wide ranges and just are not precise enough.

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Thanks so much for your info. That was so helpful!!!

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