Welcome to the NETs Group! Come say hi.

Does anyone have information on whether an MRI or CT scan is best when they are tracking your tumors?

@joannem Thanks for checking in with us, Joanne. I understand the emotional component of having to change doctors. Tell us a little bit about the protocol you are currently following. Does this new doctor come by recommendation from your previous doctor? If there are changes he/she wants to make to your current treatment program please feel free to mention your concerns and get an explanation. If your current treatment has been working well for you, there might not be any changes so try to worry too much until you have an opportunity to meet this new doctor on May 15. Always remember, you can seek a second opinion if your concerns are not addressed.
Has anyone else had a problem with a change of doctors? Teresa

I am having an emotional issue right now. We all know that from time to time our doctors will leave and we will get assigned a new doctor. That is has happened to me recently and I am very nervous about starting with a new doctor. I think the problem is each doctor has their own protocol on how they handle treatment and I am afraid that this new Doctor will change things. I won't know until May 15 and I am very stressed about it. There are no Net doctors in Las Vegas.

@lucci50 I see Dr. John Del Valle at University of Michigan. Dr. Del Valle does not do surgery, however, he is considered quite knowledgeable in the area of NETs. Here is the U of M website that introduces you to Dr. Del Valle http://www.uofmhealth.org/profile/137/john-del-valle-md. Best wishes! Teresa

I have just been treating with sandostain shots once a month....the oncologist checks through mri to see how i am doing....i have had a reccomendation for University of Michigan. They say that there is a specialist there....if someone has their name i'd appreciate it

Hello all, @amyh2439 @tresjur @joannem @gaylejean @lucci50 @derekd @gulzar @joanney @jenchaney727@dzerfas @lorettanebraska @wordnoid @trouble and @upblueeyes @ahtaylor @heidilynn4. It has been a while since I have heard from you. Let's pull up in a circle and check in with each other. Do any of you have any special concerns that you would like to share? What about any new treatments or test results? The issue of Neuroendocrine tumors had a lot of publicity in February. If you learned something new that you would like to share, let's do that as well. I'm looking forward to hearing from you. Teresa

How can you possibly self-inject into the gluteal muscle? I would never begin to try.

@lucci50 Hello Ralph: I was thinking about you as you mentioned you lived in Michigan as well. Did you contact the doctor at Univ. of Michigan yet? Please check in with us and let us know how you are doing. Best wishes for the new year!

@derekd Hello Derek and happy new year! It has been a while since we have heard from you. How are you doing? We would love to have you check in with us and let us know how you are doing. Teresa

@wordnoid I'm glad that you have found such good treatment. I've heard about the doctor in Iowa before.