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Teresa, Volunteer Mentor (@hopeful33250)

Welcome to the NETs Group! Come say hi.

Neuroendocrine Tumors (NETs) | Last Active: Sep 5 7:47am | Replies (383)

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Hello all, @amyh2439 @tresjur @joannem @gaylejean @lucci50 @derekd @gulzar @joanney @jenchaney727@dzerfas @lorettanebraska @wordnoid @trouble and @upblueeyes @ahtaylor @heidilynn4. It has been a while since I have heard from you. Let’s pull up in a circle and check in with each other. Do any of you have any special concerns that you would like to share? What about any new treatments or test results? The issue of Neuroendocrine tumors had a lot of publicity in February. If you learned something new that you would like to share, let’s do that as well. I’m looking forward to hearing from you. Teresa

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Replies to "Hello all, @amyh2439 @tresjur @joannem @gaylejean @lucci50 @derekd @gulzar @joanney @jenchaney727@dzerfas @lorettanebraska @wordnoid @trouble and @upblueeyes..."

Hi Teresa. I now know that I am NET. I didn't even know what that was , however I am new. I did the chemo last year and I will be starting the injections this week. But my NET is everywhere!! It is in 5 different organs/ or locations. And today I discovered that instead of one 5cm spot I now have 4 more in my liver. So as I read everybody's posts I realize that . But I feel very good and healthy. No side effects yet except that I get tired easier.

Constant battle with hypoglycemia caused by excess insulin even after Whipple procedure. My blood sugar is dangerously unstable, have yet to find anything that helps.