Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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I didn’t write you, I wrote a moderator. Sorry

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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i am having the same problems with very, very many email from mayo. it is good but a lot of repeats. but i do want to continue with mayo.

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I agree, and I’ve stated I understand the support is important. There should be a way to not get this many email. A separate subject for just talking would be great. People could get the support they want and the people that want to read about chronic pain can. At this point it takes a lot of time to go through all of the personal discussions to get to the posts that are about chronic pain. I’m not trying to be difficult, I’m in the same situation you all are, there’s been enough people complaining and signing off of this list that it seems like the change needs to be made, that’s all I was saying. I’m not trying to start trouble.

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@blindeyepug

Sometimes a good remedy for pain is to have a strong support network. There are things you can say here that one may not feel comfortable stating on Facebook. Perhaps there can be a separate thread for emotional and social support?

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i would go along with that.

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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Me too

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@jenapower I can get on board with that suggestion. I don’t think your the “bad guy” nor am I upset at you in any manner. I think you have a valid point and a good solution to the problem.

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Thanks, I’ve been hesitant to say anything, I really do understand that talking is important and having connection is important. I spend most of my time lying in bed on ice or on the couch on ice too. It would be good to separate some of it. Everything here has been super helpful to me and I appreciate all of it.

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@blindeyepug

Sometimes a good remedy for pain is to have a strong support network. There are things you can say here that one may not feel comfortable stating on Facebook. Perhaps there can be a separate thread for emotional and social support?

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I am so sorry to hear about your Kitty. I know how attached I am to mine, one of whom may have Lymphoma. Tests are being run. I also think it is so necessary to have support and social interaction. I was a Rehab Meds Therapist for a number of years.

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@oldkarl

Peach, the real downer here is that the closest real hospital with pain management, etc, is almost a hundred miles away. And we have a lot of speeders here, not real tourists, but folks who think they can drive 80 mph along the coast on roads built for 35 mph. Then they pile up on a 15 mph curve, at one of our most beautiful spots, and complain about the bad roads and slow drivers. If they want to drive 80, they should go over to I-5 which runs from Vancouver BC to San Diego.

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Are you interested in any Church Activities? Ours is very community oriented and our seniors are very well cared for. I also do water aerobics at the Senior Center, and I know there are a lot of programs there too.

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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@sandytoes14 and @contentandwell – The @mention feature is working for me. Please private message me if you are still having issues with it.

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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Jen, I agree. I get so many emails I am starting to delete some without reading them because I get overwhelmed with the chatter. I am consumed with pain and I had delirium my last surgery and I want the medical profession to get more knowledgeable about it. I think that if you want to just chat, that is fine, start another site. I am scared crap about my life not where I live. Please MODERATORS do something. Marield65

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@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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Hi @jenapower,
This is Colleen, the Community Director. Thank you for your private messages to me. I responded to both of them and am kindly waiting for your reply. If you didn’t receive my private responses, please feel free to contact me using this form https://connect.mayoclinic.org/contact-a-community-moderator/

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I’m jerry4info. I would like to write about my symptoms and read any response I may get.

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@sharonmay7

Yes if anyone has ideas of how we can get the attention of higher ups… Please let us know !! Every time I here somethings about pain pills it is always negative. I bet there r more people helped then hurt! Sharonmay7

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Sharon may: I am Marield65, God bless you. You are still so young, and have gone through so much. Do you ever complain and feel cheated ? How do you stay up? What are the answers? I have been through so many surgeries and pain and I have a low immune system and now feel like crap with some kind of bug but it is very hard for me to stay positive when all I want to do is live a peaceful life, not this “why me ” life. I feel so selfish at times. Then I say “why not me”. I am 72. Do you have any words of wisdom you would like to give us people who live in chronic pain when you, your self lives like us, in chronic pain?

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@sharonmay7

Yes if anyone has ideas of how we can get the attention of higher ups… Please let us know !! Every time I here somethings about pain pills it is always negative. I bet there r more people helped then hurt! Sharonmay7

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Jen, this is Marield65. I just got operated on for a cyst on my spine at L5 and I was supposed to go home the same day, but again, had a reaction to the meds and went home the 3rd day. But the operation was not such a big deal, it’s all the meds they throw at you that is the worst thing. That was just one of my 5 back surgeries. I have one more back surgery to go and I am so afraid of the anesthesia and the pain meds. This surgery will be another fusion of L3 to L 4 & 5. I am trying to put it off as long as I can. First I have to have shots to L5 where I have a pinched nerve. I read that the benzodiazepines are the worst kind of medicine to interact with pain medication. Have you heard that?

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