Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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@barbvh Hi Barb. I hope it give you some relief also, no one should have to live with constant pain like that.
I presume hemp oil has the same effect as smoking marijuana? I never knew it came in oil form. My PCP is so straight that if I ever asked him for marijuana he would probably keel over, even though it is legal here.
Good luck with this and let us know if it has helped.
JK

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@sharonmay7

Hi every one, i havnt been on line for 4_5 months. But i am the migrane person 25 days a month for the last 3 years.
Well thank god i finnly got some relief!!!
BOTOX. Yep i tried every pill every test and i mean everything!!!! It was slow to work. Started first botox in October of 2016. Still got the migranes but not as violent as before. Then the second dose on dec 17th. The headacks were not lasting as long and not as violent. Then on march 20th. My third go around!! I hav only had one a month in the last two months the 13th and 14th of april only lasted 2 days. And the 5th and 6th of this month only lasted 2 days. Also when i take something for the migrane it really helps. Before it didnt mater what i took. Nothing much helped. So if you havnt tried botox then check it out it is pretty expensive if your ins. Dosnt cover it. Good luck
Sharon

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@sharonmay7, I cannot imagine having migraines that many days in a month. I can really empathize with you. I used to have at least one 3 or 4 day migraine a month, often two. Back then Imitrix was just coming on the market but I was afraid of it because they said if you had heart problems you shouldn’t take. I do not have heart problems but everyone in my family has so that scared me.
My daughter unfortunately inherited my migraines so I will pass this on to her. Mine stopped with menopause. I think I was one of very few women anxious to go through menopause, so of course mine was late!
JK

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@sharonmay7

Hi every one, i havnt been on line for 4_5 months. But i am the migrane person 25 days a month for the last 3 years.
Well thank god i finnly got some relief!!!
BOTOX. Yep i tried every pill every test and i mean everything!!!! It was slow to work. Started first botox in October of 2016. Still got the migranes but not as violent as before. Then the second dose on dec 17th. The headacks were not lasting as long and not as violent. Then on march 20th. My third go around!! I hav only had one a month in the last two months the 13th and 14th of april only lasted 2 days. And the 5th and 6th of this month only lasted 2 days. Also when i take something for the migrane it really helps. Before it didnt mater what i took. Nothing much helped. So if you havnt tried botox then check it out it is pretty expensive if your ins. Dosnt cover it. Good luck
Sharon

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@sharonmay7 I was just forwarding your message to my daughter and wondered also, where do they inject the botox when it is for migraine?
Thanks.
JK

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Hi I am a male 76 yrs of age, in good health & an athlete. The last week in March 2017 I woke up with both hips & both shoulders, neck & back very sore. I have been diagnosed as having PMR I am on prednisone 20mg every other day. Would like to know more about this ailment & is there any other medications out there besides steroids?

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@rolandhp

Hi I am a male 76 yrs of age, in good health & an athlete. The last week in March 2017 I woke up with both hips & both shoulders, neck & back very sore. I have been diagnosed as having PMR I am on prednisone 20mg every other day. Would like to know more about this ailment & is there any other medications out there besides steroids?

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Hello @rolandhp Welcome to Connect. Thank you for giving us some information about yourself. With so many acronyms, I am always learning new ones. I’d like to introduce you to other members of Mayo Connect who can share their experiences with you. Could you share with us what PMR stands for?

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@rolandhp

Hi I am a male 76 yrs of age, in good health & an athlete. The last week in March 2017 I woke up with both hips & both shoulders, neck & back very sore. I have been diagnosed as having PMR I am on prednisone 20mg every other day. Would like to know more about this ailment & is there any other medications out there besides steroids?

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(PMR) Polymyalgia Rheumatica It comes up out of the blue affects people over 70 that are health & very active. I am on 20mg prednisone every other day some days it works very well & other days it doesn’t all I can say that it is very painful

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@rolandhp

Hi I am a male 76 yrs of age, in good health & an athlete. The last week in March 2017 I woke up with both hips & both shoulders, neck & back very sore. I have been diagnosed as having PMR I am on prednisone 20mg every other day. Would like to know more about this ailment & is there any other medications out there besides steroids?

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@rolandhp Thank you for educating me on PMR. Here is a discussion you may be interested in as well as connecting with @mach92 and @johnbishop POLYMYALGIA RHEUMATICA-MY STORY http://mayocl.in/2q2mSDs
For further reading Mayo Clinic offers this information about PMR http://mayocl.in/1wY5hW8
I suffer from fibromyalgia, osteo arthritis, OA, as well as degenerative disc disease and spinal stenosis. Some days heat works to relief, albiet temporary, the fierce ache. You said you are prescribed prednisone but do you have any other treatments that offer relief?

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Hello @rolandhp, I am currently experiencing my second episode of polymyalgia rheumatica. The first episode was 10 years ago and lasted for 3 years. I was put on 20 mg prednisone and after a few months started tapering the dosage. The last six months of the first episode I was going between 1 mg and 1/2 mg dosage until I was finally able to get off of prednisone. The second occurrence started a year ago March and I was again put on 20 mg and it made the pain go away. I have been tapering off of prednisone and I’m now at 5 mg dosage with a few aches (but I’m old and figure it goes with the territory). Mayo Clinic has some information on treatments available here – http://mayocl.in/2q61OKo. Hopefully others can provide some info if they are using a different medication. Prednisone has been the magic pill for me but I do hate the side effects – really have to watch out for weight gain.

Hoping for some answers for you.

John

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@johnbishop

Hello @rolandhp, I am currently experiencing my second episode of polymyalgia rheumatica. The first episode was 10 years ago and lasted for 3 years. I was put on 20 mg prednisone and after a few months started tapering the dosage. The last six months of the first episode I was going between 1 mg and 1/2 mg dosage until I was finally able to get off of prednisone. The second occurrence started a year ago March and I was again put on 20 mg and it made the pain go away. I have been tapering off of prednisone and I’m now at 5 mg dosage with a few aches (but I’m old and figure it goes with the territory). Mayo Clinic has some information on treatments available here – http://mayocl.in/2q61OKo. Hopefully others can provide some info if they are using a different medication. Prednisone has been the magic pill for me but I do hate the side effects – really have to watch out for weight gain.

Hoping for some answers for you.

John

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Thank you, yes I am also on 20mg right not trying to adjust the medication time frame. I now take it every other day taking 10mg in the morning & 10mg at night then skipping the next day. Will it work I will find out.

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@rolandhp

Hi I am a male 76 yrs of age, in good health & an athlete. The last week in March 2017 I woke up with both hips & both shoulders, neck & back very sore. I have been diagnosed as having PMR I am on prednisone 20mg every other day. Would like to know more about this ailment & is there any other medications out there besides steroids?

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No other medication is needed. PMR works opposite of arthritis with PMR pain is at night & the early part of the day & arthritis is opposite so I am told. I had a series of blood test done just to eliminate arthritis all proved negative So I have PMR, now depending how my systems with taking steroids only time will tell..

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That’s interesting. I’ve always taken the complete dose every morning at the same time when I get up which is what my rheumatologist told me to do. It will be interesting to find out if it works for you.

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@johnbishop

That’s interesting. I’ve always taken the complete dose every morning at the same time when I get up which is what my rheumatologist told me to do. It will be interesting to find out if it works for you.

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Like I said trying to adjust the medication. Breaking up the dose half in the AZ & half in the PM just trying to eliminate the morning pain. If it does not work I will go back to the full 20mg in the AM Will keep you posted

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@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Thank you, I found that this has been an individual path. I am still trying to accept how lonely that is.

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Hi Kelsey, I am Kristine and I suffer from Intractable pain. I think it is important to be educated on this since I have lived with suffering since I was 37 with an initial Fibromyalgia diagnosis. I think this was just a primer on things to come. Living with chronic pain is one thing but living with pain levels at a 10 plus 24/7 is another. I have Osteoporosis, severe bone pain, and a collapsing spine with a 5 level thoracic failed fusion. Many here sound similar and familiar in their suffering and for that I am very sad. I finally was put on opiods a year after my fusion since it did not relieve my suffering. I hope I have something to add and can support as well as be supported here. Every day I wake up, I try to have courage to face another day.

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Hi, I am new to the group and I suffer with chronic pelvic pain and have been for the past five years. I’ve seen every doctor imaginable and have had every test done you can think of. I have seen 2 pt who specialize in pelvic pain, but nothing seems to last more than a day. Anyone else suffer from this horrible disorder?

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