Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@gayle1

How do I private message you?

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@gayle1 Hi, Gayle. I can answer you here also, if you want to know about Kratom. But to private message me, go to the top right hand side of the screen, where there is a little envelope next to your profile page. Click on the envelope, and that is where you can do private messages. I just thought private might be better because you are sure to find my message easily. But either one is good. I do not know what i would do without Kratom. I literally could not handle my life. Looking forward to hearing from you. Lorirenee1

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@colleenyoung

Hi @donfeld, you'll notice that I removed your personal email address. We advise that you use the secure private message function to share personal contact information.
@gayle1, welcome to Mayo Clinic Connect. You can learn more about how to use Connect, including how to send a private message, here: https://connect.mayoclinic.org/get-started-on-connect/

To all, with respect to the use of Kratom, I'd like to offer this note from a Mayo Clinic pharmacist:

"Kratom is a natural product but it does have significant risks and side effects. Because of these risks the FDA banned import of Kratom in August 2016 and issued a notice of intent to classify 2 chemicals in Kratom as Schedule 1 drugs (the same category as heroin). There are no FDA-approved uses for kratom, and the agency has received concerning reports about the safety of kratom. FDA is actively evaluating all available scientific information on this issue. (2019) https://www.fda.gov/news-events/public-health-focus/fda-and-kratom

Kratom can cause dependence and withdrawal symptoms including aggression, anxiety and other negative psychiatric effects, muscle aches, spasms, tremors, insomnia, fever and upset stomach. It can also cause dangerous slowed breathing and seizures. It can worsen psychiatric disease and may increase the risk of suicide. Kratom can impair liver function. Kratom interacts with other herbal medications including Jimson Weed. It interacts with sedating medications. It has the potential for many other drug interactions because of the way it is metabolized."

For more information see:
– National Institute of Health: Drug Facts, Kratom https://www.drugabuse.gov/publications/drugfacts/kratom
– Center for Disease Control https://www.webmd.com/mental-health/addiction/news/20190411/cdc-americans-are-dying-from-kratom-overdoses#1

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@colleenyoung Thanks for posting this. I do know that all people need to know of the potential for Kratom abuse. Like any other medication, Kratom can be taken improperly by taking way too much, too often, or mixing it with other recreational, harmful drugs. However, if take wisely, it is a substance that has given people their lives back again. It has helped people come off opiods, helps intense chronic pain, helps to relax, and in very small amounts, can create energy. Deaths from Kratom are due to it's abuse. I have studied police reports from Kratom over dose, and it has generally been from the 20-27 year old age people, "partying," with Kratom. I do not know what I would do without this miracle plant. But I treat it wisely, and with the respect it deserves. Lori

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@donfeld

Thanks so much. What does it cost monthly for what is needed?

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@donfeld Hi Don, ethanaturals.com has a coupon right now to buy Kratom; coupon is TABLETS30 for 30% off what you buy. Lori

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Hi my name is Betty Walker. I am 88years old, I lost my husband 10/6/2018 and we lost our youngest son 7/2/86. I have one married son who has Parkinson's Disease, no grandchildren, one doggie and two Parakeets. I live in a retirement community located in Florida. I have bulging discs in my spine which I have received injections for. Think it's time to consider another. I have recently developed problems with my left arm, hand and fingers. Have appointment 7/9 for a diagnostic exam. I am happy to be here to share. Want to wish each of you a Happy 4th of July!

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@liz223

Hi my name is Betty Walker. I am 88years old, I lost my husband 10/6/2018 and we lost our youngest son 7/2/86. I have one married son who has Parkinson's Disease, no grandchildren, one doggie and two Parakeets. I live in a retirement community located in Florida. I have bulging discs in my spine which I have received injections for. Think it's time to consider another. I have recently developed problems with my left arm, hand and fingers. Have appointment 7/9 for a diagnostic exam. I am happy to be here to share. Want to wish each of you a Happy 4th of July!

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@liz223 Welcome liz its nice to have you in this group. We all care for each other and give out tips as to what helps us . I too have a bulging disc and waiting to see a new neurosurgeon the last one was lousy he he just said yep you have a bulging disc so hope this new one is better to talk with . Right now I'm just living with it till things get better from this virus . I live in a Senior building independent but have a lot of Sr that should be in nursing home but have caretakers here . I have bad arthritis in my R. hip and in the future if it gets worse I want to stay here fortunately my son took out a Long Term insurance for me that will provide this . I have other problems also 2 back fractures with pinched nerve , fibromyalgia and a triple by pass I had in 1996 SO I give God all the credit for me being here still. Nice to meet you and take care . Come back and post again . We also have a Just want to talk group that is nice .

Liked by rwinney

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@liz223

Hi my name is Betty Walker. I am 88years old, I lost my husband 10/6/2018 and we lost our youngest son 7/2/86. I have one married son who has Parkinson's Disease, no grandchildren, one doggie and two Parakeets. I live in a retirement community located in Florida. I have bulging discs in my spine which I have received injections for. Think it's time to consider another. I have recently developed problems with my left arm, hand and fingers. Have appointment 7/9 for a diagnostic exam. I am happy to be here to share. Want to wish each of you a Happy 4th of July!

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Hi Betty @liz223, you may also be interested in following these groups:
– Parkinson's Disease https://connect.mayoclinic.org/group/spine-health/
– Spine Health https://connect.mayoclinic.org/group/spine-health/

What area in your spine are the discs bulging? What are the issues you're having with your arm, hand and fingers?

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@colleenyoung

Hi Betty @liz223, you may also be interested in following these groups:
– Parkinson's Disease https://connect.mayoclinic.org/group/spine-health/
– Spine Health https://connect.mayoclinic.org/group/spine-health/

What area in your spine are the discs bulging? What are the issues you're having with your arm, hand and fingers?

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Thanks for your response, Colleen. The most troublesome bulging disc is in my lower right side. I did see a spine surgeon after tests, MRI, etc. he said considering my age, the complicated surgery and recuperation time, it would be too risky for someone of my age. He recommended a pain management clinic which has been wonderful. They gave me injections and so far after months I am still able to walk.
My shoulder started hurting after I tried raking my yard. It has gone down my arm and now there is numbness in part of lower arm and thumb and two fingers. They are weak. I have an appointment this week with a diagnostic clinic to check out for me. There is pain, but not all the time

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@liz223

Thanks for your response, Colleen. The most troublesome bulging disc is in my lower right side. I did see a spine surgeon after tests, MRI, etc. he said considering my age, the complicated surgery and recuperation time, it would be too risky for someone of my age. He recommended a pain management clinic which has been wonderful. They gave me injections and so far after months I am still able to walk.
My shoulder started hurting after I tried raking my yard. It has gone down my arm and now there is numbness in part of lower arm and thumb and two fingers. They are weak. I have an appointment this week with a diagnostic clinic to check out for me. There is pain, but not all the time

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@liz223

Hi, Betty. I hope you're keeping safe from the corona virus. It sounds like Florida is being hit pretty hard.

I'm turning 70 in August, and I already have heard doctors tell me that "because of your age, you should…" I don't feel any older than I did at 60. I might even feel better.

Did you flex your shoulder in some way to make it hurt, and then start radiating down your arm? I'm no stranger to chronic pain. I have peripheral polyneuropathy, with bad pain in my feet and ankles, and last week I saw a neurospecialist who was going to talk with me about the next step in my treatment. But she had ordered an MRI of my lower back, and she showed me what my spinal column looks like. One disc is just gone, and the spine is squeezing the cluster of nerves that runs inside the spine, which could be what's causing at least some of the pain. It explains, as well, why I can't stand straight. My wife took a picture of me playing the piano at church a few months ago, and I look hunched over. I didn't realize I wasn't sitting up straight. The doctor said that opening up the space for the nerves could improve my posture. I'm surely hopeful that surgery will relieve some of my pain.

Pain specialists and management makes a huge difference for a lot of people. I haven't gone to a pain clinic yet. We live in the center of Oregon, a long way from any management clinics, but I've been seeing a pain specialist for a couple of years, and he has worked hard to find a treatment plan. I've heard lots of people tell how much their work with a management clinic has benefitted them. I'm glad you're one of their success stories.

I hope that you'll get the help you need on Thursday. I'll be interested in knowing what's going on with your shoulder.

Jim

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Hello, Everyone…my name is Lori, 53 years old, moderate arthritis in lower back and in cervical spine. Cervical spine is also showing moderate stenosis. I have a couple herniated discs too. There is nothing between my L4 and L5, bone on bone. I'm in constant pain. Recently diagnosed with Sjogren's syndrome and possibly have small fiber neuropathy. (I have really painful onsets of burning and itching with no visible rash. Nothing seems to help and it's getting worse. Waiting on results of a skin biopsy to confirm small fiber neuropathy. ) I have mild to moderate arthritis in both hips and an SI joint that likes to wreak havoc on occasion. I have a small amount of the protein present in multiple myeloma, but it's a low amount so no treatment I also have migraines, major Depressive disorder, adult Separation anxiety and generalized anxiety. Other than that, I'm good!😁 I have 5 beautiful grandkids, love to read, and do repurposing and upcycling on all kinds of furniture or whatever I find. Looking forward to finding ways to alleviate pain.

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You should try CANABIS. You have to find a doctor specialised in medical use of canabis drops.

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I went to a Pain Specialist Doctor. We tried several medicines and found that for me, gabapentin and lyrica work well, they calm my nervous system so that it relaxes and stops sending false pain messages like 'your legs on fire' and 'a swarm of wasps is attacking your arms and legs'.

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Before this virus drove us all into isolation, my pain specialist doctor was holding classes for people with chronic pain. There were lessons in meditation, yoga, and other things we could do at home that alleviate pain for some people. It seems that we all have to try everything, starting with the most conservative, until we find things that work. I see my pain doctor about every other month now so he can increase the doses of my prescriptions if necessary. Best of luck to you! It's a journey that we're all on, separately but together. I have found this group to be very helpful and open about sharing news of anything that might help any of us. Peggy

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I have had a lot of pain lately and I wondered if my neuropathy has progressed to the point where I need drugs (I never want to take drugs) … I'm happy to report that I read the label on one of my bottles of medicine and found out that I've been taking 1 tablet – I'm supposed to take 2. I took 2 yesterday and I hope to feel better soon. Sometimes it takes a couple of days before my nervous system reacts to new prescriptions. Peggy

Liked by lioness

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@notine4pain

Hello, Everyone…my name is Lori, 53 years old, moderate arthritis in lower back and in cervical spine. Cervical spine is also showing moderate stenosis. I have a couple herniated discs too. There is nothing between my L4 and L5, bone on bone. I'm in constant pain. Recently diagnosed with Sjogren's syndrome and possibly have small fiber neuropathy. (I have really painful onsets of burning and itching with no visible rash. Nothing seems to help and it's getting worse. Waiting on results of a skin biopsy to confirm small fiber neuropathy. ) I have mild to moderate arthritis in both hips and an SI joint that likes to wreak havoc on occasion. I have a small amount of the protein present in multiple myeloma, but it's a low amount so no treatment I also have migraines, major Depressive disorder, adult Separation anxiety and generalized anxiety. Other than that, I'm good!😁 I have 5 beautiful grandkids, love to read, and do repurposing and upcycling on all kinds of furniture or whatever I find. Looking forward to finding ways to alleviate pain.

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@notime4pain Welcome to Mayo Connect. We are not medical professionals here, but we do share our experiences and support with the hope of helping each other on their journeys.

As you can see, there are several responses to your questions. We are each different, and what works for one may not be the answer for someone else. As @pfbacon commented, it is often an elimination process to find the best combination of medications/exercises/lifestyle to help us. That is what is so great here. We share!

You listed several things that impact your life right now. What have you tried in the past to give you relief?
Ginger

Liked by lioness, rwinney

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@gingerw

@notime4pain Welcome to Mayo Connect. We are not medical professionals here, but we do share our experiences and support with the hope of helping each other on their journeys.

As you can see, there are several responses to your questions. We are each different, and what works for one may not be the answer for someone else. As @pfbacon commented, it is often an elimination process to find the best combination of medications/exercises/lifestyle to help us. That is what is so great here. We share!

You listed several things that impact your life right now. What have you tried in the past to give you relief?
Ginger

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I was trying to just throw some of the treatments out on here and to give an overview of where I have been in the past with the beginning stages of how my treatments began and the reasons they started and how things have changed along the way. My problems first began in December 1998 when I was driving a city bus. I was on my way to the start of the line where my route started at 6:00am. I was making a right hand turn from a double yellow line lane where no passing is allowed turning onto the side road that was where I parked to begin my route. While making the turn I didn’t see any other traffic on the road and halfway through the I felt and heard a loud crash that almost through me out of my seat and because I had my seat belt on I was able to keep control of my bus and stop and got out of my seat to see that a dumpster carrying truck had hit me and he truck was pinned in next to a telephone pole which he had knocked halfway down trying to pass me on the right side of the bus which I could tell that he was trying to pass me before I completed my turn. He thought he was going to be able pass me on the wrong side of the street for one thing. He was still trying to start his truck and move it but he had pinned himself in by the phone pole. I have add more later .

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