Weakness won't go away

I will be interested to read responses to this. I am newly diagnosed but I am feeling weakness in my shoulder as well as hips. They have started my prednisone which is reducing the sore muscles but my hips feel weak like they will not support me and my right shoulder feels weak even though doctors tested my muscle strength and it is very good. But after they test my muscle strength the muscles feel tired.

Same here, muscle strength but quickly fatigue and a lack of stamina. I have been off steroids for a year, but the fatigue lingers. My doctor told me to get used to it, that PMR is here to stay but rises and falls unpredictability. I toy with the urge to go back on Prednisone but am resisting it due to the negative side effects.

I feel the same, as soon as I can taper off the prednisone I want to remain off of it if at all possible.

I am still on the weening down, 12.5 a day. Hips went back to pain and legs are numb. So so tired of the fatigue and mental crap. Anybody else feeling this way.

I took prednisone for about 15 months for PMR. Once the pain in my glutes/hips went away I still had pain in my shoulders. My Rheumatologist prescribed physical therapy for shoulder pain and it's taken a while but pain is resolving.

Same here. About 3 months after tapering off of prednisone, gelling in my buttocks, thighs, and neck came back. But my arms and hands are normal. Getting up out of a chair is hard again, but once I get going I'm fine (gelling). The rheumy offered to put me back on 2 mg of prednisone, but I am resisting due to bone loss. I was hoping the change of seasons/ibuprofin/weight training would help, but nothing has changed. I'm going to give it a year of toughing it out. I am definitely better than before prednisone, but worse than being ON prednisone. Dilemma.

I feel your pain, sorry, bad joke.

I had to look up gelling, sounds right. This article said it is more common in folks with autoimmune issues.
https://www.osc-ortho.com/blog/what-is-the-gelling-effect-of-the-knee/

Hi , I am new here. I am also on the tapering down and only got diagnosed recently. Tomorrow starting 7.5 mg but the pain already came back at 10 mg and the fatigue is unbearable. I find the pain is going away somewhat during the day with some stretching exercises . The fatigue and feeling down about it all is hard to cope with

Hey all of you. I am a newbie and am so glad that I joined this. I feel for us all but now I do not feel so alone. Unless you have this condition and are living with the pain and medication issues one does not what we are going through, even ones lovely spouse. Thanks

Hello @dvorahberlin, I see that you have already connected with another new member @danboldman and I would like to welcome you both to Connect. There are quite a few members discussing fatigue with PMR but I thought you might both find this discussion helpful:
-- PMR and Fatigue. Interesting study: https://connect.mayoclinic.org/discussion/pmr-and-fatigue-interesting-study/

I registered for a webinar that is being hosted on YouTube tonight that I think could benefit a lot of us folks with PMR. Even though my PMR is in remission, I thought it would be interesting to learn more about the condition.

Polymyalgia Rheumatica: Closing Gaps in Diagnosis and Disease Monitoring, Thursday, September 18 at 6:30 PM Eastern - https://www.youtube.com/watch?v=j9kRz0aPVSc