We were able to communicate with "home" support via computer. Look into
We were able to communicate with “home” support via computer.
Look into Gift of Life Transplant House. This is where you and your caregiver will find support beyond description! My husband and I were fortunate to make that our “home” for the 10+weeks we were in Rochester.
The follow-up care (at a distance) is great. I can call at anytime and talk to a real person!!! I also have a post trxp nurse who returns phone calls promptly. My lab results are faxed from here directly to Mayo. And my local doctors are willing to/and do communicate with Mayo if the need arises. I have met many other trxp recipients thru volunteering with our local organ donor ambasador group, and a lot of them seem to be sent home without much follow-up. Some of them are envious of me in that regard.
BTW – I recommend that you keep a basic log of what you go thru – It is amazing how quickly you forget . @lnerrr