Anyone else have Superior Mesenteric Artery Syndrome (SMAS)?

Posted by mattis1best @mattis1bestyahoocom, Aug 16, 2011

"With only about 500 reported cases in the history of English-language medical literature, recognition of SMA syndrome as a distinct clinical entity is controversial, with some in the medical community doubting its existence entirely. SMA syndrome is also known as Wilkie's syndrome, cast syndrome, mesenteric root syndrome, chronic duodenal ileus and intermittent arterio-mesenteric occlusion. It is distinct from Nutcracker syndrome, which is the entrapment of the left renal vein between the AA and the SMA.

SMA syndrome is estimated to have a mortality rate of 1 in 3. Delay in the diagnosis of SMA syndrome can result in fatal catabolysis (advanced malnutrition), dehydration, oliguria, electrolyte abnormalities, hypokalemia, acute gastric rupture or intestinal perforation (from prolonged mesenteric ischemia), gastrectasia, spontaneous upper gastrointestinal bleeding, hypovolemic shock, aspiration pneumonia, or sudden cardiovascular collapse from increased velocity of bloodflow in the SMA due to the reduced mesenteric angle. Go here to this link to know about my fight http://rare-disease-day-belfast-2011.blogspot.com/2011/02/paula-mattis-is-real-super-hero-she.html

Superior mesenteric artery (SMA) syndrome is a very rare condition characterized by recurrent vomiting, abdominal distention, weight loss, and postprandial distress. The cause is compression of the duodenum between vessels and the vertebrae and paravertebrae muscles when the angle between the superior mesenteric vessels and the aorta is lower than 18°. The diagnosis is difficult and usually is made by exclusion. Conservative management is helpful at first; however, symptom recurrence would indicate surgical treatment. EVERY LIFE COUNTS Let's get people the Public, Doctors start taking this more seriously and get Awareness/Prevention, researching possible causes and work towards early detection
Thanks, Paula

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theresar76 | @theresar76 | Sep 28, 2024

I was diagnosed with superior mesenteric artery syndrome in May of this year. I need help getting treated. Severe weight loss

thomthom67 | @thomthom67 | Sep 29, 2024

My daughter has been vomiting daily for a month and a half, she was diagnosed with superior mesenteric artery syndrome, at the moment we are trying to increase her weight with nutrition, but it is impossible, we were told about parenteral nutrition, is there anyone who did parenteral nutrition and it went well, maybe is there anyone from Greece?

jackjack96 | @jackjack96 | Feb 19 11:20am

I am 28 years old, and have been experiencing some really bad health issues for the last year+. Within this last month, the dramatic weight loss I’ve went through has caused me to develop SMA Syndrome. I am very malnourished, and have a consultation with my surgical unit to discuss possible surgery to fix it. I’m now in a position where I’m not gonna be able to make that appointment, and will have to cancel it. It’s taken months to get where I am now, and this appointment for consultation isn’t even until almost the end of March. I don’t know what to do. Because I’m getting progressively worse every single day.

jackjack96 | @jackjack96 | Mar 4 6:11pm

I’m 28 years old trans man, and was diagnosed with SMA a month or so ago. There’s definitely something bigger that caused it for me, but the threat the SMA presents on my life is scary. I’ve dropped down to 93 pounds. I cannot eat solid foods, and even the protein shakes that I’ve been getting by with, have started getting thrown up every single time I drink them. I’m in constant horrific pain, some of which is so sudden and so harsh I scream. I’m at a loss, I was told to talk to the surgical unit at the medical facility I go to(only place I can go on that insurance), and I can’t talk to anyone until beginning of April. I’m afraid I’m going to die.

mikey1oregon | @mikey1oregon | Mar 21 8:36am

In reply to @jackjack96 "I’m 28 years old trans man, and was diagnosed with SMA a month or so ago...." + (show)

SMA is a very serious problem. But without my surgery I would not be here now. And trust me open surgery to repair any SMA issues is not fun. I am post 3 years, and having difficulty in maintaining my weight (115lbs. Now. Should be 165lbs.) Recovery was longer then I expected (61 years old at the time of surgery) but a necessary procedure. I 🙏 the best for you! Take care (listen to your Dr.s) and good luck 🤞