Watching a Meningioma Brain Tumor

A brief update......I just had an MRI and once again, no change in my 2 Meningioma's.......Now 17 years of Watch and Wait with NO needed surgery!!!!! Just wanted to share so others are not so afraid if they are on a watch and wait for years 🙂

I have never heard of a gamma tile. I will look that one up.

Hi @colleenyoung, unfortunately, I have. Last October I was incidentally diagnosed with a 2.5cm meningioma behind my right eye, thank God it is not pressing my optic nerve, it shows a bit of calcification, so I hope it grows very slowly if at all. I'm asymptomatic and on surveillance till April, but I am freaking out, I am suffering with anxiety and depression. I am soooo afraid of the surgery that I am thinking about GammaKnife instead. I'm in Canada so here is more complicated to choose your physicians and treatments since the healthcare system is public. Could someone tell me more about the pros & cons of Gamma Knife? Thanks.

I saw my oncologist yesterday. Thankfully the area where the gamma tile was placed worked no new growth i was told the area behind my eye was previously radiated was not surgically removed because the neurosurgeon thought it would cause too much damage i asked if there was something i could do to slow growth he told me to ask my neurologist

@ninha06, welcome. Have you also been diagnosed with a meningioma? How are you doing?

Hi Linda, I glad to hear it. What are the sizes and location of your meningiomas? Take care.

A brief update......I just had an MRI and once again, no change in my 2 Meningioma's.......Now 17 years of Watch and Wait with NO needed surgery!!!!! Just wanted to share so others are not so afraid if they are on a watch and wait for years 🙂

I am surprised to hear you've had 4 craniotomies. I didn't know that was an option. I had a craniotomy 6 months ago for a meningioma that was almost 3 cm. and close to my optic nerve. I also have 2 other meningiomas that I need to deal with (now that I'm 6 months post surgery I'm mentally up to dealing with the other two) and I thought my only option was radiation, which scares me more than another craniotomy. Good wishes for you as you continue to navigate your health issues.

I am currently on watch wait for four meningioma that were left behind. I have had four Crainiotomy one being a cancerous tumor grade 3. They placed gamma tile in hopes of keeping the meningioma from coming back. I just had an MRI that showed minimal growth, I see my oncologist tomorrow to see what his plan is. This all started in 2015 for a large tumor that had to come out six years later I had to have another one removed i had proton radiation after each surgeries then 11 months later was my third craniotomy. I have had 1 seizure and memory loss but that could be age related. I am 71 I still have the shooting pains in my scalp occasional headaches I feel off balance. But im alive and it could have been much worse its in Gods hands and I pray they find a way for all of us to overcome this