Watching a Meningioma Brain Tumor

The wait and see option scares me since there is a good possibility of becoming blind. I am aware that this is usually a slow-growing tumor, however, my L optic nerve is already stretched a lot by the mass. I really would like to know if anyone has had this surgery .

Hi @kmart. You may have noticed I moved your post to this existing thread on meningioma brain tumors. I do this so that you can connect with others who have or had this tumor. Click VIEW & REPLY in your email and you will be able to read what past members have posted about this condition.

I also wanted to introduce you to @slakeman, @gloriajean and @rose4622 as they all have had this tumor and may be able to sympathize with what you are going through.

@kmart, you mentioned that the surgery scares you even more than the wait and see option. Do you mind sharing what about the surgery scares you?

I continue to have decreased vision in my left eye since approximately May/2018. Had cataract surgery on both eyes when I began to notice my vision in my L eye was not right. After several tests, my eye doctor ordered a MRI which shows a meningioma on the optic chiasm. I saw a neurosurgeon yesterday and he went over my options, wait and see, or surgery. My eye doctor wants me to have the surgery immediately. I have been told I will, probably, lose sight in my L eye (depending on the growth of the tumor) and my R eye is also compromised. The wait and see option scares me but the surgery even more. Within 6 months my L eye vision continues to diminish.

I am 44 and only after being in a car accident was my tumor discovered. I've named my tumor "Olive" because that is the size of the tumor. My meningioma sits just above my cerebellum. I go for my next MRI on December 11th

@ees1 , Let us know how your 1st annual Watch and wait MRI went, we are all crossing our fingers and toes for you that there is NO growth!!!!

Hi there - my saying (in trying to overcome my extreme fear LOL) is INCH BY INCH. And breath by breath! Enjoy each moment. It is great that you are relying on facts.
Peaace & Happiness
Gloria

Me, too. First annual W&W MRI today. Feel new symptom of tinnitus could mean growth. Scared beyond description. One step at a time. Work on facts only. Breathe. Expert NSs are out there. Keep on. Ok....anything else?? :/

@twomama I'm glad that you saw your doctor. The best thing for concussion is rest and limiting your activity, including reducing screen time. Not that I want to send you away from Connect, but health comes first.

I was thinking about talking to the neuro-opthamologist above it. I alsace sent my neurosurgeon at message asking him if it's normal. Hopefully I will hear from him by end of the week.

Hi @mrector, welcome to Connect. It takes time to heal after surgery. However, I would hope that some of the pain in your jaw would start to subside. Have you talked to your surgeon about it? It would also be good to mention it at your upcoming appointment with the neuro-opthamologist.

You may also be interested in this discussion on Connect:

- Optic Nerve Meningioma patients https://connect.mayoclinic.org/discussion/optic-nerve-meningioma-patients/