1. < Brain Tumor

Watching a Meningioma Brain Tumor

Posted by robinem @robinem, Feb 8, 2018

I've just been diagnosed with a 2cm meningioma tumor on the right front of my head. I am 59 years old and the surgeon has told me I will need to "do something" with my tumor someday since I am younger. What is the benefit of waiting?

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bosslady18769 | @bosslady18769 | Feb 28, 2019
In reply to @gloriajean "Hang in there! I, too, had the same brain tumour as you. It was a diagnosed..." + (show)
@gloriajean

Hang in there! I, too, had the same brain tumour as you. It was a diagnosed 5 yrs
ago after having a grand mal seizure (I'd never had epilesy) &.never had any symptoms.
Emergency did a Ct scan & a benign Grade 1 menongioma tumour of 3m size was found. OMG!!!
I was only 64 yrs old & never been sick or had surgery
OMG!
I could not have the surgery the next day - not coping with the news & since I was on my own , decided to go jome & figure things out. Started to "shop around" for the best neurosurgeon in the country as well as the best hospital. I interviewed 3 NS & finally.settled on the one who did the surgery. He was successful in removing the entire tumour without any tendrils breaking thru the membrane protecting my beloved brain!
So, from my experience & learning from so many other survivors of meningioma tumours, get/demand an MRI & shop around for the be NS you can find.
Are you on any meds to prevent seizures - do you have balance provlems?
Also che k the American Brain Tumour Society's website for their excellent resources!
Breathe & take one step at a time!!!
You will make it through this. Our brains are unbelievably tough and bounce back so many times.

Jump to this post

I'm glade you are feeling better, and had a successful surgery! That is awesome news! Prayers are with you that you may remain healthy!
I am not on any medication he ordered an eeg, maybe after that!
I will check out the resources you gave me and hopefully I too can find a dr who will listen and help me get this out of my brain or ease my mind to help me live with it!! Thank you for your advice and your reply

REPLY
bosslady18769 | @bosslady18769 | Feb 28, 2019
In reply to @gloriajean "FYI - the reason for the initial CT scan beong done in Emergency was because I..." + (show)
@gloriajean

FYI - the reason for the initial CT scan beong done in Emergency was because I wa unconcious & really out of it. So.the doctors needed to find out what was wrong with me
Were you unconcious after your seizure?

Jump to this post

I didn't even know I had the seizure until the next day, my husband thought I had one related to medication I was on, I had an MRI in November because I thought I was having symptoms related to ms which runs in my family, balance issues, weakness in my legs and just feeling tired. They found the 6mm meningioma on superior frontal lobe on left side. Since the diagnosis I just didn't want to think about it and go on with life. Then 3 weeks ago I started having headaches and then my husband told me about the seizure. I have also been terribly tired and feeling exhausted. Also I'm forgetful I went to my follow up and dr is going to do an eeg, and in may wants to do an angiogram and repeat MRI. I thought ok I will repeat test and if I'm still uncomfortable with him I will go to Nebraska Medicine which supposedly have good neuro oncology drs. I just worry because of my symptoms now. I feel they are related to the meningioma.

REPLY
2 replies
gloriajean | @gloriajean | Feb 28, 2019
In reply to @gloriajean "Hang in there! I, too, had the same brain tumour as you. It was a diagnosed..." + (show)
@gloriajean

Hang in there! I, too, had the same brain tumour as you. It was a diagnosed 5 yrs
ago after having a grand mal seizure (I'd never had epilesy) &.never had any symptoms.
Emergency did a Ct scan & a benign Grade 1 menongioma tumour of 3m size was found. OMG!!!
I was only 64 yrs old & never been sick or had surgery
OMG!
I could not have the surgery the next day - not coping with the news & since I was on my own , decided to go jome & figure things out. Started to "shop around" for the best neurosurgeon in the country as well as the best hospital. I interviewed 3 NS & finally.settled on the one who did the surgery. He was successful in removing the entire tumour without any tendrils breaking thru the membrane protecting my beloved brain!
So, from my experience & learning from so many other survivors of meningioma tumours, get/demand an MRI & shop around for the be NS you can find.
Are you on any meds to prevent seizures - do you have balance provlems?
Also che k the American Brain Tumour Society's website for their excellent resources!
Breathe & take one step at a time!!!
You will make it through this. Our brains are unbelievably tough and bounce back so many times.

Jump to this post

FYI - the reason for the initial CT scan beong done in Emergency was because I wa unconcious & really out of it. So.the doctors needed to find out what was wrong with me
Were you unconcious after your seizure?

REPLY
1 reply
gloriajean | @gloriajean | Feb 28, 2019
In reply to @bosslady18769 "I'm 37 years old and found out I have a left frontal meningioma that is 6mm..." + (show)
@bosslady18769

I'm 37 years old and found out I have a left frontal meningioma that is 6mm in size. I understand this is a smaller meningioma but I'm freaking out. I know that as little as 2 years ago this was not in my brain because I had test ran due to a mass on my Prada glands, which included scans on my brain. I have had 1 seizure and have been dealing with forgetfulness, depression, headaches and irritability. Does anyone know if these are symptoms of the meningioma and if they are if I should seek a second opinion? My last MRI scan was in November and my neuro doctor doesn't want to repeat scan until May, and I reported all these new symptoms to him. Thank you for any help, I'm feeling Scared and feeling alone, so thank you for any reply

Jump to this post

Hang in there! I, too, had the same brain tumour as you. It was a diagnosed 5 yrs
ago after having a grand mal seizure (I'd never had epilesy) &.never had any symptoms.
Emergency did a Ct scan & a benign Grade 1 menongioma tumour of 3m size was found. OMG!!!
I was only 64 yrs old & never been sick or had surgery
OMG!
I could not have the surgery the next day - not coping with the news & since I was on my own , decided to go jome & figure things out. Started to "shop around" for the best neurosurgeon in the country as well as the best hospital. I interviewed 3 NS & finally.settled on the one who did the surgery. He was successful in removing the entire tumour without any tendrils breaking thru the membrane protecting my beloved brain!
So, from my experience & learning from so many other survivors of meningioma tumours, get/demand an MRI & shop around for the be NS you can find.
Are you on any meds to prevent seizures - do you have balance provlems?
Also che k the American Brain Tumour Society's website for their excellent resources!
Breathe & take one step at a time!!!
You will make it through this. Our brains are unbelievably tough and bounce back so many times.

REPLY
3 replies
mrector | @mrector | Feb 28, 2019
In reply to @bosslady18769 "The dr didn't seem to be concerned and kept repeating that these meningioma are always slow..." + (show)
@bosslady18769

The dr didn't seem to be concerned and kept repeating that these meningioma are always slow growing and would be decades before I noticed symptoms, however I have never had a seizure before and have only had the 1 so far. The migraines are persistent and these symptoms have only been present for about 3 weeks. Thank you for your reply, I was thinking about going to a neuro oncology doctor just to make sure all the i's are dotted and t's are crossed. Especially because I have other health issues
I pray that you get to feeling well and I will pray for a speedy recovery!! God bless

Jump to this post

You're welcome. I'm going through the same thing with my back. I just had 4th spinal injection today, first 3 didn't work. Dr's don't seem to take us seriously anymore. We have to be persistent to get answers. You know your body better than anyone so I would definitely get a second opinion.

REPLY
1 reply
bosslady18769 | @bosslady18769 | Feb 28, 2019
In reply to @mrector "Did the Dr seem concerned that you had a seizure? Have you had seizures before? I..." + (show)
@mrector

Did the Dr seem concerned that you had a seizure? Have you had seizures before? I think I would get a second opinion just to be sure it's okay. I started losing vision in my left eye and my eye Dr thought it was glaucoma. I finally got a Dr to listen to me and do an MRI and found my meningeoma. Hope you find some answers soon.

Jump to this post

The dr didn't seem to be concerned and kept repeating that these meningioma are always slow growing and would be decades before I noticed symptoms, however I have never had a seizure before and have only had the 1 so far. The migraines are persistent and these symptoms have only been present for about 3 weeks. Thank you for your reply, I was thinking about going to a neuro oncology doctor just to make sure all the i's are dotted and t's are crossed. Especially because I have other health issues
I pray that you get to feeling well and I will pray for a speedy recovery!! God bless

REPLY
2 replies
mrector | @mrector | Feb 28, 2019
In reply to @bosslady18769 "I'm 37 years old and found out I have a left frontal meningioma that is 6mm..." + (show)
@bosslady18769

I'm 37 years old and found out I have a left frontal meningioma that is 6mm in size. I understand this is a smaller meningioma but I'm freaking out. I know that as little as 2 years ago this was not in my brain because I had test ran due to a mass on my Prada glands, which included scans on my brain. I have had 1 seizure and have been dealing with forgetfulness, depression, headaches and irritability. Does anyone know if these are symptoms of the meningioma and if they are if I should seek a second opinion? My last MRI scan was in November and my neuro doctor doesn't want to repeat scan until May, and I reported all these new symptoms to him. Thank you for any help, I'm feeling Scared and feeling alone, so thank you for any reply

Jump to this post

Did the Dr seem concerned that you had a seizure? Have you had seizures before? I think I would get a second opinion just to be sure it's okay. I started losing vision in my left eye and my eye Dr thought it was glaucoma. I finally got a Dr to listen to me and do an MRI and found my meningeoma. Hope you find some answers soon.

REPLY
1 reply
bosslady18769 | @bosslady18769 | Feb 28, 2019
In reply to @kiturah "When I first heard I had a brain tumor, I thought I was the only one...." + (show)
@kiturah

When I first heard I had a brain tumor, I thought I was the only one. I've learned, meningioma's are very common. Some grow, some don't. Mine unfortunately was pushing against my brainstem and had to be removed. Not all was removed so I continue to have MRI's. I can say I'm no longer claustrophobic!

Jump to this post

I'm 37 years old and found out I have a left frontal meningioma that is 6mm in size. I understand this is a smaller meningioma but I'm freaking out. I know that as little as 2 years ago this was not in my brain because I had test ran due to a mass on my Prada glands, which included scans on my brain. I have had 1 seizure and have been dealing with forgetfulness, depression, headaches and irritability. Does anyone know if these are symptoms of the meningioma and if they are if I should seek a second opinion? My last MRI scan was in November and my neuro doctor doesn't want to repeat scan until May, and I reported all these new symptoms to him. Thank you for any help, I'm feeling Scared and feeling alone, so thank you for any reply

REPLY
2 replies
mrector | @mrector | Dec 12, 2018

I have a question...I am 3 1/2 months postop and have been having headaches just about every day for a couple of weeks. Headache is mainly on my left side where I had surgery. Should I be concerned about this or am I overreacting??

REPLY
mrector | @mrector | Dec 11, 2018
In reply to @kmart "@mrector you have been so very helpful and I am very grateful for your responses. You..." + (show)
@kmart

@mrector you have been so very helpful and I am very grateful for your responses. You have provided me with very important information.

Jump to this post

@kmart if you have any more questions I will do my best to answer them...

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