1. < Brain Tumor
Profile picture for robinem

Watching a Meningioma Brain Tumor

Posted by robinem @robinem, Feb 8, 2018

I've just been diagnosed with a 2cm meningioma tumor on the right front of my head. I am 59 years old and the surgeon has told me I will need to "do something" with my tumor someday since I am younger. What is the benefit of waiting?

Interested in more discussions like this? Go to the Brain Tumor Support Group.

Profile picture for sarasally2
sarasally2 | @sarasally2 | Jan 5, 2020
In reply to @lisalucier "@sarasally2 - since you used the term "housebound," it sounds like you'd prefer to be out..." + (show)
Profile picture for Lisa Lucier, Moderator @lisalucier

@sarasally2 - since you used the term "housebound," it sounds like you'd prefer to be out and about some outside of your home. Do you have an appointment with any of your doctors coming up where you could ask directly about how you might manage some specific symptoms?

Jump to this post

because of the dizziness and vertigo I can't drive so am pretty much stuck inside. I have tests coming up in the next few weeks and see the surgeon but for a year I have tried PT, several meds, I don't do well taking meds so try to stay busy inside. They don't have much to offer.

REPLY
Profile picture for Lisa Lucier, Moderator
Moderator
Lisa Lucier, Moderator | @lisalucier | Jan 5, 2020
In reply to @sarasally2 "I am on a wait and see program, been a year and am due for another..." + (show)
Profile picture for sarasally2 @sarasally2

I am on a wait and see program, been a year and am due for another MRI this month, I am in NC and go to Duke. My age and health issues are not helping. We shall see what happens but so far no one has addressed the symptoms. So I am house bound most of the time

Jump to this post

@sarasally2 - since you used the term "housebound," it sounds like you'd prefer to be out and about some outside of your home. Do you have an appointment with any of your doctors coming up where you could ask directly about how you might manage some specific symptoms?

REPLY
1 reply
Profile picture for cyndymc
cyndymc | @cyndymc | Jan 4, 2020
In reply to @deblee "Are you having balance issues? I am in SC." + (show)
Profile picture for deblee @deblee

Are you having balance issues? I am in SC.

Jump to this post

No balance issues.

REPLY
Profile picture for sarasally2
sarasally2 | @sarasally2 | Jan 4, 2020
In reply to @cyndymc "The benefit of waiting is , I am told this may never grow, and brain surgery..." + (show)
Profile picture for cyndymc @cyndymc

The benefit of waiting is , I am told this may never grow, and brain surgery has many risks.

Jump to this post

I am on a wait and see program, been a year and am due for another MRI this month, I am in NC and go to Duke. My age and health issues are not helping. We shall see what happens but so far no one has addressed the symptoms. So I am house bound most of the time

REPLY
1 reply
Profile picture for deblee
deblee | @deblee | Jan 4, 2020
In reply to @cyndymc "It sounds like you and I have close diagnosis, I am 62 looking forward to retirement..." + (show)
Profile picture for cyndymc @cyndymc

It sounds like you and I have close diagnosis, I am 62 looking forward to retirement in a few years. Do you live in AZ?

Jump to this post

Are you having balance issues? I am in SC.

REPLY
2 replies
Profile picture for cyndymc
cyndymc | @cyndymc | Jan 3, 2020
In reply to @deblee "I am 71 and mine is not in an ideal place for surgery. but doctor said..." + (show)
Profile picture for deblee @deblee

I am 71 and mine is not in an ideal place for surgery. but doctor said he would remove if needed. It also may have a lot to do with my age.

Jump to this post

It sounds like you and I have close diagnosis, I am 62 looking forward to retirement in a few years. Do you live in AZ?

REPLY
1 reply
Profile picture for deblee
deblee | @deblee | Jan 3, 2020
In reply to @cyndymc "I agree, no surgery unless absolutely necessary, how old are you." + (show)
Profile picture for cyndymc @cyndymc

I agree, no surgery unless absolutely necessary, how old are you.

Jump to this post

I am 71 and mine is not in an ideal place for surgery. but doctor said he would remove if needed. It also may have a lot to do with my age.

REPLY
1 reply
Profile picture for cyndymc
cyndymc | @cyndymc | Jan 2, 2020
In reply to @deblee "They are not sure but the NS sent me to an ENT who could also not..." + (show)
Profile picture for deblee @deblee

They are not sure but the NS sent me to an ENT who could also not find a cause, I have a full spine and another brain MRI on Friday, so we shall see if anything has changed and maybe will have an answer. I feel as you that if I can live with the symptoms right now, it would be better than the risks of surgery.

Jump to this post

I agree, no surgery unless absolutely necessary, how old are you.

REPLY
1 reply
Profile picture for cyndymc
cyndymc | @cyndymc | Jan 2, 2020

right prepontine cistern, I am told not a great place for surgery due to busy location, but is operative if needed.

REPLY
Profile picture for deblee
deblee | @deblee | Jan 2, 2020
In reply to @cyndymc "I was told that my tumor is on a trigeminal nerve causing my symptoms. Where is..." + (show)
Profile picture for cyndymc @cyndymc

I was told that my tumor is on a trigeminal nerve causing my symptoms. Where is your tumor located?

Jump to this post

It is located in the left tentorium. Where is yours located?

REPLY
Please sign in or register to post a reply.