Watching a Meningioma Brain Tumor

Posted by robinem @robinem, Feb 8, 2018

I've just been diagnosed with a 2cm meningioma tumor on the right front of my head. I am 59 years old and the surgeon has told me I will need to "do something" with my tumor someday since I am younger. What is the benefit of waiting?

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deblee | @deblee | Jan 2, 2020

In reply to @cyndymc "I was told that my tumor is on a trigeminal nerve causing my symptoms. Where is..." + (show)

It is located in the left tentorium. Where is yours located?

cyndymc | @cyndymc | Jan 1, 2020

In reply to @deblee "They are not sure but the NS sent me to an ENT who could also not..." + (show)

I was told that my tumor is on a trigeminal nerve causing my symptoms. Where is your tumor located?

deblee | @deblee | Jan 1, 2020

In reply to @cyndymc "Hi if the tingling is not due to meningioma, then what is the cause?" + (show)

They are not sure but the NS sent me to an ENT who could also not find a cause, I have a full spine and another brain MRI on Friday, so we shall see if anything has changed and maybe will have an answer. I feel as you that if I can live with the symptoms right now, it would be better than the risks of surgery.

cyndymc | @cyndymc | Dec 31, 2019

In reply to @deblee "I also have a meningioma that is 2.4 cm since last scan in October. I am..." + (show)

Hi if the tingling is not due to meningioma, then what is the cause?

cyndymc | @cyndymc | Dec 31, 2019

The benefit of waiting is , I am told this may never grow, and brain surgery has many risks.

cyndymc | @cyndymc | Dec 31, 2019

In reply to @lisalucier "Hi, @cyndymc - I'd like to tag @jill333 @donald1214 @gloriajean @robinem so they can share some..." + (show)

Hi , I am watching and waiting, MRI in 6 months, trying Gabapentin for symptoms , not helping.

ginette55 | @ginette55 | Dec 31, 2019

In reply to @lisalucier "Hello, @ginette55 - welcome to Mayo Clinic Connect. I'd wonder, too, if I were watching and..." + (show)

Not yet. But I am expecting a new appointment.

Lisa Lucier, Moderator | @lisalucier | Dec 31, 2019

In reply to @ginette55 "I have been diagnosed in 2018 with meningioma 12 mm on my right front brain. They..." + (show)

Hello, @ginette55 - welcome to Mayo Clinic Connect. I'd wonder, too, if I were watching and waiting with 2 meningiomas and I started losing vision.

If like to tag @deblee @cyndymc @donald1214 @robinem to provide some support and any input they may have at this time about continuing to watch and wait with the vision loss you've experienced

Have you had the opportunity to talk with your doctor about the changes in your vision? If so, what did he or she say?

ginette55 | @ginette55 | Dec 28, 2019

I have been diagnosed in 2018 with meningioma 12 mm on my right front brain. They gave me antibiotics for 10 days. I had again a MRI 3 months ago and was told that this meningioma is now 8 mm but I have an other one below of 4 mm. They advise me to wait and see. I don't have any motor sign but losing some of my vision. Do I have to wait?

deblee | @deblee | Dec 28, 2019

In reply to @cyndymc "I have a 1.2 cm meniginoma . I have been having tingling sensation to my forehead..." + (show)

I also have a meningioma that is 2.4 cm since last scan in October. I am having the same symptoms as you but also balance problems and numbness in feet. Doctor recommended Gabapentin but don't want to take it. My NS says the tingling numbness in forehead, eye and now lip is not connected to the meningioma. He is suggesting the watch and wait, too. I have another MRI in January. Good luck to you.