Watching a Meningioma Brain Tumor

Posted by robinem @robinem, Feb 8, 2018

I've just been diagnosed with a 2cm meningioma tumor on the right front of my head. I am 59 years old and the surgeon has told me I will need to "do something" with my tumor someday since I am younger. What is the benefit of waiting?

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Profile picture for ginette55 @ginette55

Yes, your oncologist will tell you the risks of invading some vital part of your brain. The problem of cancer is the rapid multiplications of the cells.

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I thought all meningiomas were benign.

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yes. The growing should be checked. If they show no changes, a surgery is not recommended.

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Profile picture for averagewoman @averagewoman

Why? If it kept growing, wouldn’t that cause more problems?

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Yes, your oncologist will tell you the risks of invading some vital part of your brain. The problem of cancer is the rapid multiplications of the cells.

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Profile picture for sanderjakidd @sanderjakidd

I am on the watch and wait regimen also. Incidental discovery when they were ruling out tumors for tinnitus. No symptoms. It’s been a year and a half. Having my third MRI soon. No change from first to second. My meningioma is a left side convexity 3cm x 2cm x 1 1/2 cm. I saw a neurosurgeon recommended by my primary care physician. I went back to my PCP and asked if there was anyway I could get a Mayo consult. My hospital has an agreement with the Mayo Clinic so she was able to get me a free consult. She did all the leg work. Their interpretation was the same as my neurosurgeon. Since no symptoms and so far not growing wait and watch. I could have it removed because it is an easy removal spot but my PCP said it’s brain surgery so don’t do it if you don't have to. I’m 67 years old. There are new technology medical treatments being used and perfected every year. This is why waiting can be good if you aren’t having symptoms. I hope I won’t need surgery.

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As a man who elected surgery, you have made a VERY wise choice.

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Profile picture for averagewoman @averagewoman

Why? If it kept growing, wouldn’t that cause more problems?

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That is a question for your neurologist but it may not continue to grow. That can be checked with MRI's but the surgery like any other is
real pain in the ass AND has multiple risks.

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Profile picture for bobhills @bobhills

Robin, Have you gotten any response to your question about the meningioma/ I just had one removed and it is looking like the worst decision of my life

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Why? If it kept growing, wouldn’t that cause more problems?

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Profile picture for sanderjakidd @sanderjakidd

That is wonderful news. Best of luck for your future.

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WOW, October 24th and starting to feel better. I had surgery on Dec 9th and still feel like crap but I am not a patient man

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Profile picture for sanderjakidd @sanderjakidd

I understand. I am in a Facebook group called Meningioma Talk. It is a private group. It is amazing how many stories there are. You hear of people that have had a tumor for years with no growth and then it will suddenly grow. Or people that have had no growth for 10 years or more. Or people that have growth within 3-6 months. It’s all new to me. Waiting is difficult. But I want to avoid surgery if I can. Thanks for your response.

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Sander, thanks for your reply. As a man who has had the surgery, I would say that if you can avoid it then do so. The recovery process is a bitch and appears that it will take a while. The actual surgery problems are no more than minimal, but the medications required are not
good at all. One those is KEPPRA which provides horrible times.

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Profile picture for Christel Pareigis @pranas

Hi, I was in the same position. Left side Sphenoid Wing Meningioma, growing over my optical nerve as well. (6.4cm x 3.4cm 7.7cm). I started to have speech problems and in my left eye sometimes sharp pain. So I decided to do my second surgery (first surgery 2012) on 1/7/2020 here in Los Angeles. I was scared about my eye side and so other issue which could create a brain surgery, like you mentioned. When I woke up, after a 7 hour surgery, I couldn't believe I could see everything better, after 2 ½ days in the hospital they released, me due to the fact that I was "top-fit". I am so happy I did it. I am 67 years old myself but I did have problems and therefore had to consider the operation. I do know it is a difficult decision....good luck to you!!!

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I understand. I am in a Facebook group called Meningioma Talk. It is a private group. It is amazing how many stories there are. You hear of people that have had a tumor for years with no growth and then it will suddenly grow. Or people that have had no growth for 10 years or more. Or people that have growth within 3-6 months. It’s all new to me. Waiting is difficult. But I want to avoid surgery if I can. Thanks for your response.

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Profile picture for tonj657716 @tonj657716

I had surgery on October 24th I am starting to feel better! For me surgery was what was recommended because of size and location! I wish you luck in whatever you choose! I feel better no headaches my arm and shoulder and leg pain is better pretty much all my problems are getting better!:

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That is wonderful news. Best of luck for your future.

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