Watching a Meningioma Brain Tumor

Thank you. I came across the Romero report in Journal of Neuroimaging. My cardiologist suggested that the neurosurgeon I saw did not want to operate. The whole thing, the simultaneous discovery of a meningioma and atrial fib, is depressing. My only symptom is a decrease in sense of smell. My cariologist polled neurologists and neurosurgeons at his University Medical Center and said that the consensus is that patients with meningiomas can be anticoagulated. Atrial Fib is a well know risk factor thromboembolic stroke. Maybe if they can sucessfully cardiovert me, I can go back less agressive anticoagulation, but I know cardioversion often fails to produce a lasting remission from atrial fib.

Hi @alex3l and welcome to connect. That is a very interesting question.

Here is a research article that I think matchings your situation: "Intracranial Hemorrhage Sparing Meningioma in an Anticoagulated Patient" - https://onlinelibrary.wiley.com/doi/abs/10.1111/j.1552-6569.2007.00111.x

Here is another discussion where others are talking about watching a meningioma tumor: https://connect.mayoclinic.org/discussion/watching-a-meningioma-brain-tumor/

Here is a discussion on atrial fibrillation that I thought would be helpful: https://connect.mayoclinic.org/discussion/side-efects/

Back to you @alex3l, how are you feeling?Any symptoms currently?

<p>I have olfactory groove meningioma. 75y/o male. Also heart disease (atrial fibrillation) requiring anticoagulation. One option suggested by neurosurgeon is to follow, since minimal symptoms. Asked neurosurgeon if following on anticoagulation could allow meningioma to bleed. (Possible brain hemorrage) Answer was "I don't know." Does anyone know about following menigiomas safely while on anticoagulantss? Any references? Thank you, Alex3l</p>

Thank you for that information. I may get it done if symptoms become painful or interfere with walking. Since I have balance issues, I don't need that.

So glad you found some relief with the bracelets. I am doing some research on the internet to find something else that might lessen the numbness. At this time, it is not painful so thankful for that.

I understand why you aren’t going for the test. I did it because I felt sure they would recommend carpal tunnel surgery. This was so far away from the result. If they can’t help you with your neuropathy why go through the test. Maybe you can find alternate methods to deal with it. Research it on the internet. I have relief from arthritis pain in my hands by wearing Baltic amber bracelets. The mineral in it is absorbed into the skin and fights inflammation. I’m not sure if it works for everyone but it has helped me. 🙂

I’m waiting to be scheduled for one to rule out ocular myesthenia Gravis since I have Grave’s eye disease. I’ve had it done before. It’s not terrible.

I have decided not to have the nerve study since needles would have to be placed in my legs feet and face. Also, from what I have learned, there is not much that can be done even if something is found, and like you there might not be a definitive answer.

There a new radiations with Protons+ They don't affect normal cells. they are more precise too. You should ask who can use them for you. Best wishes.

Wow, I thought maybe I was over worrying about my multiple tumors after two craniotomies, gamma knife and cyber knife, but have had swelling on my right cheekbone, pain, etc. and now find out the meningioma behind my right eye has started to grow , is invading my sinus and above cheekbone. Good Grief right. Has anyone had an experience with this. I was told it's too dangerous to operate so will need another round of radiation. This is definitely the never-ending story, and yet doctors act like having meningiomas are no big deal. peg