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Watching a Meningioma Brain Tumor

Posted by robinem @robinem, Feb 8, 2018

I've just been diagnosed with a 2cm meningioma tumor on the right front of my head. I am 59 years old and the surgeon has told me I will need to "do something" with my tumor someday since I am younger. What is the benefit of waiting?

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brouivi | @brouivi | Apr 8 12:32am

Hello
I had a 4 cm meningioma I just had surgery to remove 6 weeks ago . I was told if it was 2 cm or less it would have been possible to get rid of it with radiation but 4 was too big. I would suggest you get scans at least every 6 months so the doctor can see if it is growing .. I found out I had the tumor when I asked for an MRI because I was getting frequent headaches but no other symptoms other then some fatigue but thought it was just tension .

REPLY
mono21 | @mono21 | Apr 6 8:38am
In reply to @joetex "Just my opinion, but the headaches and bad vision sound more serious than watch and wait...." + (show)
@joetex

Just my opinion, but the headaches and bad vision sound more serious than watch and wait. I would think an MRI would be more definitive. Is it something to bring up with your neurologist or even get a second opinion? Mine was near the optic nerve and I was told it needed treating before my vision started getting affected.

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Yes great advise. I’m waiting for an appointment at the Mayo. Hopefully I’ll get in fast. My Primary Care prescribed me Qulipta for the migraines. But with insurance they’re $200. My vision is horrible.
I hope all is going well for you.
Thank you!!

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mono21 | @mono21 | Apr 6 8:34am
In reply to @mono21 "I know" + (show)
@mono21

I know

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It’s awful to just sit and wait. Thank you.

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mono21 | @mono21 | Apr 6 8:33am
In reply to @joetex "Just my opinion, but the headaches and bad vision sound more serious than watch and wait...." + (show)
@joetex

Just my opinion, but the headaches and bad vision sound more serious than watch and wait. I would think an MRI would be more definitive. Is it something to bring up with your neurologist or even get a second opinion? Mine was near the optic nerve and I was told it needed treating before my vision started getting affected.

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I hope you’re ok. The doctor was a neurosurgeon in Santa Fe. So I’m waiting for an appointment the Mayo.

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mono21 | @mono21 | Apr 6 8:14am
In reply to @mono21 "It’s a doctor in Santa Fe. I’m waiting for an appointment at the Mayo in Rochester...." + (show)
@mono21

It’s a doctor in Santa Fe. I’m waiting for an appointment at the Mayo in Rochester. I honestly thought it was kinda crazy because it’s growing and he just wants to keep on it. He is a neurosurgeon.
Thank yiu

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Oops he wants to keep an eye on it.
Thank you

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mono21 | @mono21 | Apr 6 8:13am
In reply to @mkoch "Who is this doctor? If it's just a neurologist I'd suggest you really need to get..." + (show)
@mkoch

Who is this doctor? If it's just a neurologist I'd suggest you really need to get a consultation with a neurosurgeon.

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It’s a doctor in Santa Fe. I’m waiting for an appointment at the Mayo in Rochester. I honestly thought it was kinda crazy because it’s growing and he just wants to keep on it. He is a neurosurgeon.
Thank yiu

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1 reply
mkoch | @mkoch | Apr 5 1:46pm
In reply to @mono21 "Good morning, I have meningioma. They found it back in June. It was 15mm. In September..." + (show)
@mono21

Good morning,
I have meningioma. They found it back in June. It was 15mm. In September it was at 18.4. In February it’s at 2.1 cm. Dr will do nothing just monitor it in September I’ll have another ct to see if it’s grown. I have terrible headaches and my vision is getting bad. Now just sit and wait

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Who is this doctor? If it's just a neurologist I'd suggest you really need to get a consultation with a neurosurgeon.

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1 reply
mkoch | @mkoch | Apr 5 1:42pm
In reply to @ncadler "here is MY story: For 15+ years I have had a small meningioma, 1.5 cm., in..." + (show)
@ncadler

here is MY story:
For 15+ years I have had a small meningioma, 1.5 cm., in the parietal lobe that has done nothing! it was diagnosed at University of California Davis.
INTHE LAST MONTH (March 2025) my head grew one that went from zero to nearly 4cm.
that is scheduled to be removed surgically this month BECAUSE of the size, location, rate of growth.
Previously I had a stage 3 astrocytoma, the size of a golf ball with radiation afterwards, from which I recovered 40 yrs ago. that surgery took over 12 hours! This is reported to only take 3 hrs.

I suggest that a person not worry. with 21century technology, most anything is safe and doable! Good luck to all!

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Great advice! You definitely seem to be a person who sees the glass as "half full" rather than "half empty." Good for you! Sending well-wishes your way for your upcoming surgery.

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joetex | @joetex | Apr 5 12:36pm
In reply to @mono21 "Good morning, I have meningioma. They found it back in June. It was 15mm. In September..." + (show)
@mono21

Good morning,
I have meningioma. They found it back in June. It was 15mm. In September it was at 18.4. In February it’s at 2.1 cm. Dr will do nothing just monitor it in September I’ll have another ct to see if it’s grown. I have terrible headaches and my vision is getting bad. Now just sit and wait

Jump to this post

Just my opinion, but the headaches and bad vision sound more serious than watch and wait. I would think an MRI would be more definitive. Is it something to bring up with your neurologist or even get a second opinion? Mine was near the optic nerve and I was told it needed treating before my vision started getting affected.

REPLY
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