Kidney cancer patients: Let's connect and introduce yourself

YOUVE GOT THIS ! ! Praying for strength and healing !

Hi! I take a chemo drug daily and immunotherapy every 4 weeks. Did you ever take chemo drug? Do you still have immunotherapy? If not, how long did you and when did you stop?

I had my kidney removed (stage 3 cancer) June 2017, and have had no problems with one kidney since. Subsequent immunotherapy has shrunk the post surgery "spots" that popped up in the lungs, then the spleen and pancreas and is now almost all gone (although I believe that cancer is never "all gone". Good Luck in whatever you decide...

Having my port placed tomorrow, Echo next week, chemo begins Jan. 3 and 4. 12 weeks of chemo, 1 month off, then surgery. This will be followed by one year of immune therapy. I think there is way more I don't know. Don't know anything nutritionally yet. Best news for stage IV is "curative intent". I just hope I'm as tough as I think I am!

How are you doing, @drmarci? I know you probably received a lot of information at your appointment. How are you feeling about the treatment plan?

Tomorrow afternoon 12/19

Counting the days. Unless something changes I will have radical nephrectomy for RCC on January 12. I have been working out 4-5 days a week, but I have been an “exerciser” my entire adult life. If you are new to exercise than begin slowly. Do not overdo any exercise. I do not worry for myself. If something were to happen to me I will not even know. However, I worry constantly about my family and their future. Blessings.

Welcome, @drmarci. I agree with @sav1 to stay hydrated and physically active as you prepare for treatment. You may also be interested in joining these related discussions about urothelial cancer:

- Urothelial adenocarcinoma
https://connect.mayoclinic.org/discussion/urothelial-adenocarcinoma/

- Diagnosed with High-Grade Urothelial Cell Carcinoma - ANYONE?
https://connect.mayoclinic.org/discussion/diagnosed-with-high-grade-urothelial-cell-carcinoma-anyone/

I'm sure you have loads of questions looping through your mind as you wait for your treatment planning appointment. I suggest keeping pen and paper (or phone) handy and jotting them down. Naturally, keep asking questions here. There are others here who have been in your shoes.

When will you find out about the treatment you'll be getting?

I was very scared to have my kidney removed. That was in Oct ‘22. I had no other health issues and was relatively fit 63 year old female. I was pretty much in bed the first week but pushed myself to get up and move about my house as much as I could. Mine also was done by robotics but still had. 5-6” incision to get kidney out!
After about 4 weeks, I was walking straight and doing a lot of routine tasks…I pray your surgery goes as well as mine did. Things do change so it’s best to take it a day at a time:)

I have rcc kidney cancer and being operated on in March the operation is done with robotics and they said if kidney doesn’t start to bleed it’s one day in hospital and 6 weeks rest