Kidney cancer patients: Let's connect and introduce yourself

Posted by koke @koke, May 2, 2023

I have stage 4 kidney cancer. Taking target and immunotherapy drugs. Would love to connect with anyone who is going through the same process or has kidney cancer!

Interested in more discussions like this? Go to the Kidney Cancer Support Group.

I Koke,
My husband was also diagnosed with stage 4 kidney cancer in August 2021. He had his left kidney removed but the cancer had spread to his lungs. He took immunotherapy Keytruda and target therapy Lenvima for about 7 months until the side effects caused them to take him off. That was a year ago and so far the treatment has kept his cancer at bay and there is no new spread. We now go back every 4 months for scans. His next one is this June. If you have any specific questions I am willing to discuss what we went through and what we know, if that might help. Very scary to hear this news but I believe that target and immunotherapy are relatively new treatments for this type of cancer and I believe it is a welcome treatment to combat this terrible disease. Please reach out if you would like to talk or if you have any questions. - Nancy

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Welcome @koke. Allow me to tag a number of members who have experience with kidney cancer along with @emily29. @bomed @b1375911 @racing212 @lkhanson @pml @nang @sally0526 @pcondon @collegeprof @azkidney57 @nang @w5wiggi @paulinlouisiana @mb4414 @pamcaponio @tenniswood @cindysummit @mrodriguezc can also share their diagnosis and the treatments they've had.

Koke, which targeted therapy and immunotherapy drug are you taking? Did you have surgery?

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Hello, I Had stage 4 synovial sarcoma in my left kidney with Mets.

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