Kidney cancer patients: Let's connect and introduce yourself

Oh, it’s very different. Kidney cancer is type of cancer…kidney disease is not cancer. At the very beginning of being diagnosed, I didn’t understand the difference either:)

I don’t believe so. Renal disease is failure of the kidney to disease, other than cancer. Renal/kidney cancer is because of cancer.

Hi, my name is Mary, and I was diagnosis about three years ago with Stage 3 Rental Disease, but no one has ever said this was or is associated with Kidney Cancer. My blood is checked every three months and it always shows that I am still in stage 3. Is this the same as what you all are going through or different?

Thank you for sharing. I get a CT scan every 3 months to ‘see’ what is happening with my kidney cancer that spread to a lymph node attached to my lung. Last scan determined I did ‘respond’ to drugs and the lymph node is back to normal size. This does not confirm the cancer is gone. I continue to take cabometyx daily (target drug) and get an IV immunotherapy drug every 4 weeks. I will get a CT scan again in September.
I believe I am cancer free by Gods grace and the drugs. I feel very very blessed and live each day with a smile and a prayer!

Was the affected kidney removed?

My name is ron the farmer and im her e because of Gods grace I was diagnosed renal cell carcinomas in my kidney 75% was a blob I have been taking 200mil of keytruda every 3 weeks and everyday I take lenvima 20mill I have been training eating right two in care of my add who is 84.so aftern8 months I feel great in getting some of the strength back I use to have.i feel like the cancer is gone?

Based on my experience, I had a biopsy which confirmed RCC. Then I had my right kidney removed about 5/6 weeks later.

Just had an abdominal ct scan with iv contrast in a 7cm mass, radiologist said it has characteristics consistent with rcc. Not sure if that is a diagnosis or not. There is a mass on ny left lung too, along with 2 small masses in my liver. Idk what to think or believe.

I recently had an abdominal CT scan with contrast, for a 7.1 x 6.5 x 6.5cm mass. The CT scan report states:
IMPRESSION:
1. There is a large mass in the lower pole of the left kidney. This has the typical appearance of a renal cell carcinoma.
2. Interval decrease in size of the nodule in the left lower lobe.
3. Dilatation of the common common bile duct with abrupt transition in the head of the pancreas. Further evaluation is recommended.
4. Additional findings as described above.

Not sure if that is a diagnosis or does a specialist have to make that diagnosis?

Yep. I hold you in my heart.