Kidney cancer patients: Let's connect and introduce yourself

Posted by koke @koke, May 2, 2023

I have stage 4 kidney cancer. Taking target and immunotherapy drugs. Would love to connect with anyone who is going through the same process or has kidney cancer!

Interested in more discussions like this? Go to the Kidney Cancer Support Group.

@goibib

Thank you Ron, I appreciate your reply. I haven't been very active as the Votrient pill makes me so nauseous but I will try very hard to start exercising again. I believe walking is excellent.

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I'm so sorry honey I serve a mighty God I have cheated death more times than i can count I excepted Jesus in my heart when I was in juvenile hall at the age 15 I can honestly say He is true to his word the lion of Judah is my shield he gives mighty angels charge over me.i will pray for u love.

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@ronspon59

Sally my name is Ron the farmer I to have rcc I'm 64 years old I have trained all my life excercise will improve your quality of life start out doing little stuff like arm raises any movement will help u to combat anything that's trying to stop u

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Thank you Ron, I appreciate your reply. I haven't been very active as the Votrient pill makes me so nauseous but I will try very hard to start exercising again. I believe walking is excellent.

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@ronspon59

Hi love my name is Ron the farmer I'm 64 years old super active person I was diagnosed with rcc two years ago.i went thru one year of complete pain issues almost died went from 185 to 130lbs in 6 weeks I just kept praying ,praying,praying God heard my crys gave me bad ass doctors I have a growth on my kidney that was half my kidney it was engulfed by this tumor it spread to both my lungs my humerus into the bone and my nuts that was 11 months ago.now it's out of my lungs and alittle on my humerus and out of my nuts. I have gained 32lbs back I can ride my rode bike 5 Miles in 28 min I was a avid boxer and been athletic all my life so I train like it's the the last day of my life.thankyou Jesus you are the only way.amen

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Keytruda and lenvi ma is my kimo

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Hi love my name is Ron the farmer I'm 64 years old super active person I was diagnosed with rcc two years ago.i went thru one year of complete pain issues almost died went from 185 to 130lbs in 6 weeks I just kept praying ,praying,praying God heard my crys gave me bad ass doctors I have a growth on my kidney that was half my kidney it was engulfed by this tumor it spread to both my lungs my humerus into the bone and my nuts that was 11 months ago.now it's out of my lungs and alittle on my humerus and out of my nuts. I have gained 32lbs back I can ride my rode bike 5 Miles in 28 min I was a avid boxer and been athletic all my life so I train like it's the the last day of my life.thankyou Jesus you are the only way.amen

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@ronspon59

Sally my name is Ron the farmer I to have rcc I'm 64 years old I have trained all my life excercise will improve your quality of life start out doing little stuff like arm raises any movement will help u to combat anything that's trying to stop u

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The more you move the longer u live activity = longevity go hand in hand

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@goibib

Hi. I too have kidney cancer . I am on a pill called Votrient, but even though I take anti nausea pills I don't manage to eat enough and keep losing weight.
Anyone got any suggestions? I would be very grateful. I am 77 and my name is Sally.

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Sally my name is Ron the farmer I to have rcc I'm 64 years old I have trained all my life excercise will improve your quality of life start out doing little stuff like arm raises any movement will help u to combat anything that's trying to stop u

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Hi. I too have kidney cancer . I am on a pill called Votrient, but even though I take anti nausea pills I don't manage to eat enough and keep losing weight.
Anyone got any suggestions? I would be very grateful. I am 77 and my name is Sally.

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Last CT scan showed that cancer in left kidney has not spread. At 81 I continue to feel that having kidney removed will cause me more problems that will negatively effect my quality of life. Initial diagnosis was made about six months ago. Energy levels are a little low, but generally I feel fine and am able to walk daily and do other tasks with no difficulty. Next scan will be done in about six months.

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My name is Ron farmer approx 2 years ago I was diagnosed with rcc it was this huge blob that engulfed my left kidney it spread to both my lungs my humerus I have been taking keytruda and lenvima for 9 months the cancer has shrunk its not in my lungs anymore I have gained 32 lbs back I went from 185 to 130 in 2 months it was the most horrible stuff I ever went thru.now all I can say is God gave me doctors that saved my life again

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@twobeb87

I don’t believe so. Renal disease is failure of the kidney to disease, other than cancer. Renal/kidney cancer is because of cancer.

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Sorry you're going through this but I thank you for the clarification. Pray you get better soon.
Mary

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