Kidney cancer patients: Let's connect and introduce yourself

Posted by koke @koke, May 2, 2023

I have stage 4 kidney cancer. Taking target and immunotherapy drugs. Would love to connect with anyone who is going through the same process or has kidney cancer!

Interested in more discussions like this? Go to the Kidney Cancer Support Group.

@goibib

Hi. I too have kidney cancer . I am on a pill called Votrient, but even though I take anti nausea pills I don't manage to eat enough and keep losing weight.
Anyone got any suggestions? I would be very grateful. I am 77 and my name is Sally.

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Sally my name is Ron the farmer I to have rcc I'm 64 years old I have trained all my life excercise will improve your quality of life start out doing little stuff like arm raises any movement will help u to combat anything that's trying to stop u

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Hi. I too have kidney cancer . I am on a pill called Votrient, but even though I take anti nausea pills I don't manage to eat enough and keep losing weight.
Anyone got any suggestions? I would be very grateful. I am 77 and my name is Sally.

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Last CT scan showed that cancer in left kidney has not spread. At 81 I continue to feel that having kidney removed will cause me more problems that will negatively effect my quality of life. Initial diagnosis was made about six months ago. Energy levels are a little low, but generally I feel fine and am able to walk daily and do other tasks with no difficulty. Next scan will be done in about six months.

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My name is Ron farmer approx 2 years ago I was diagnosed with rcc it was this huge blob that engulfed my left kidney it spread to both my lungs my humerus I have been taking keytruda and lenvima for 9 months the cancer has shrunk its not in my lungs anymore I have gained 32 lbs back I went from 185 to 130 in 2 months it was the most horrible stuff I ever went thru.now all I can say is God gave me doctors that saved my life again

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@twobeb87

I don’t believe so. Renal disease is failure of the kidney to disease, other than cancer. Renal/kidney cancer is because of cancer.

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Sorry you're going through this but I thank you for the clarification. Pray you get better soon.
Mary

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@dsh33782

Ginger
Thanks for the search references on renal cell carcinoma.
I'm doing more research to be ready with questions on 9/14 first appointment with surgeon. Beyond that I'm working on new website http://DHKCS.ORG to document my kidney cancer story. I also have http://DHECS.ORG which documents my esophageal cancer story.

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Don, I just read your esophageal cancer journey on your page.

Yesterday I was speaking with a medical student, at the request of my nephrologist. A comment I made in passing was, "Well, we are given two kidneys. We can get by on one. So, we have a spare, either for us, or to share with someone." It really got me thinking! And as a side story, a friend of mine donated his spare to his sister. Fifteen years after that he needed a kidney, was placed at top of the list, and was transplanted two weeks later! Miracles happen everyday.
Ginger

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@koke

I was just thinking if you! So glad the news was so good!!! Very very happy for you and your family!!! Prayers are powerful … day by day!

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Hi Don. Just checking in and seeing how your doing? I know the thought of having a kidney removed and the surgery itself can be overwhelming? It was for me. Fortunately it’s not as bad as I thought. The kidney function of the remaining kidney seems to be better than when I had two of them? Hang in there!! Any questions at all , just hauler!!

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@gingerw

Don, how disheartening to get this news. It certainly takes a toll on you, right?

If you go to the search bar under the "cancer" support group, or the "kidney and bladder" support group, and type in renal cell carcinoma, you will find several discussions and comments. Perhaps this will shed some information for you?

Meanwhile what are you doing for yourself to minimize the concern and feeling of being adrift?
Ginger

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Ginger
Thanks for the search references on renal cell carcinoma.
I'm doing more research to be ready with questions on 9/14 first appointment with surgeon. Beyond that I'm working on new website http://DHKCS.ORG to document my kidney cancer story. I also have http://DHECS.ORG which documents my esophageal cancer story.

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@dsh33782

Hellow everyone. I'm a mentor and have been successfully treated for esophageal cancer in the last year, but today I got the results of biopsy on my left kidney indicating I have a growing mass on my left kidny called renal cell carcinoma. I have now been transferred to kidney surgeon and have first appointment on 9/14. The expectation is that he will want to remove mass if possible or remove the entire kidney. I have no symptoms at this time. The kidney tumor was found on last CT scans showing kidney tumor has grown 1 cm. I'll learn a lot more at first appointment with kidney surgeon, but I would love to hear from others who have been down this road before me.

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Don, how disheartening to get this news. It certainly takes a toll on you, right?

If you go to the search bar under the "cancer" support group, or the "kidney and bladder" support group, and type in renal cell carcinoma, you will find several discussions and comments. Perhaps this will shed some information for you?

Meanwhile what are you doing for yourself to minimize the concern and feeling of being adrift?
Ginger

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Hellow everyone. I'm a mentor and have been successfully treated for esophageal cancer in the last year, but today I got the results of biopsy on my left kidney indicating I have a growing mass on my left kidny called renal cell carcinoma. I have now been transferred to kidney surgeon and have first appointment on 9/14. The expectation is that he will want to remove mass if possible or remove the entire kidney. I have no symptoms at this time. The kidney tumor was found on last CT scans showing kidney tumor has grown 1 cm. I'll learn a lot more at first appointment with kidney surgeon, but I would love to hear from others who have been down this road before me.

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