Kidney cancer patients: Let's connect and introduce yourself

Hi....with me they told me what the cancer was called after doing the biopsy. The MRI was to make sure it had not spread to other places in my body. I have renal cell carcinoma. It had not spread. Was contained in the kidney. I was sent straight to an oncologist who started me on a treatment......a pill called Votrient. They also had a dietician there who gave me the foods to eat and what to avoid or limit. I have been on the treatment for a year and my MRI showed last month that the cancer was stable. Unfortunately I am supposed to have 800 mg of Votrient but can only manage 400mg because of the nausea. I don't know if any of this will be of any help but please let us know how you get on. 🙏

My last comment did not mention what was affected. I am being treated for possible kidney cancer.

I am just starting my journey. I am 68 years old. I had ultrasound two weeks ago, MRI scheduled this week. Now what? Could they tell what type of cancer or growth without surgery? Was biopsy helpful? Or do you fly by seat of your pants? Did you have surgery and then find out if it was cancerous? How many surgeons did you go to, before you picked one? WOW!! I could ask a hundred more. Any help would be great. Crazy world.

Thanks.

We talked intensely about that as well, given her age. But for her, it was partially because she was reasonably healthy that she opted to try the surgery. She decided that 2 or 3 months of difficulty was worth it in her case. She had just had chemo and radiation so she was a little run down after that. She feels much better and the weight of not having the cancer looming helped her as well. She has testing each 6 months and moving to yearly soon. It's all about balance and knowing yourself ... and not letting fear make decisions for you I guess. Hoping you are doing well .

The after effects of this radical surgery is why I am very hesitant to have it done. At this point I am able to do my daily hour walks easily and other routine things easily such as driving my new car and feel reasonably good for my age. Thanks for the information. I am still leaning towards just letting nature take its course and continue to enjoy my life; at 81 I value each day that I still feel well.

I have had 2 kidney cancers, with 2 partial nephrectomies , Clear cell on left, papillary on right. Surgery was 90 days apart. My recovery was complicated by multiple infections and took about 6 weeks before I could really function. My 86 yr old mother had bladder cancer with chemo and radiation at 83 , made her very exhausted for about 3 months after treatment. At 85 she had her kidney removed . I was her care provider. She had trouble eating, walking just made her very weak for about 3 weeks. She stayed in our home, I cared for her she had a nurse and rehab pt come every few days. She was in hospital 1 week... required my help with bathing, wound care, meals, a commode bedside and my care intensively for 2 weeks afterwards. Her mind was all little fuzzy for about 2 weeks after but then vleared. She was able to walk with her walker at 2 weeks for short steps and then by 3 weeks around the house, 4 weeks doing stairs unaided but slowly. Long distance
like doctor appts we used a wheel chair. By 8 weeks she was only using a cane and doing well. She returned to her home at about 90 days, with only her roommate making occasional meals and doing her shopping. It's been a year and she is doing well. Walking, swimming for exercise etc. Hope that helps .

I too serve a mighty God - Thank you for your prayers and I will pray for you too.

I'm so sorry honey I serve a mighty God I have cheated death more times than i can count I excepted Jesus in my heart when I was in juvenile hall at the age 15 I can honestly say He is true to his word the lion of Judah is my shield he gives mighty angels charge over me.i will pray for u love.

Thank you Ron, I appreciate your reply. I haven't been very active as the Votrient pill makes me so nauseous but I will try very hard to start exercising again. I believe walking is excellent.