Kidney cancer patients: Let's connect and introduce yourself
I have stage 4 kidney cancer. Taking target and immunotherapy drugs. Would love to connect with anyone who is going through the same process or has kidney cancer!
Interested in more discussions like this? Go to the Kidney Cancer Support Group.
Hi. I have had 2 PN. I was diagnosed with bi lateral kc in March of 2023. Tumors in both kidneys. The tumors were not similar in mass and location. Had two separate procedures one in May and one last week. Currently recovering and doing great.
Many thanks for your reply please keep in touch
Kind regards Noelene
Good Evening,
My name is Doug and I too was just diagnosed with RCC. They will “stage” your cancer and determine from that staging what they will do. Some of those on this web site have had biopsies to determine the cancer. I have not had a biopsy. They told me my course of treatment is a partial nephrectomy. I am currently seeking a second opinion. The reason for my second opinion is to see if I lik e the next surgeon better than the first. No question should go unanswered. No question is less valuable than another. They’re amazing people who are part of this support group. All willing to help and support. We are all on this journey. Blessings.
Hello I’ve just been diagnosed with RCC kidney cancer I find out next month what they will do they were talking about a nephrectomy partial do not know how long I can’t work after operation or what it involves my anxiety has settled but very worried
@dougr19 I am listing a few good places to check here in Oregon, that you might want to look into. If you want to stay within the state, tske a look at them. If you would like to stay on the West Coast, there are resources I can provide in San Francisco and Los Angeles areas.
Legacy Good Samaritan [Portland]: https://www.legacyhealth.org/Services-and-Resources/services/adult/cancer-institute
Oregon Health University [Portland]: https://www.ohsu.edu/health/find-a-doctor/search?term=kidney+cancer&accepting=&age_group=Adult+%2818%2B%29&gender=&insurance=&language=&distance=&location=&online=&pcp=&sort=&shuffle_seed=PS-6535962ca7de88.16896517
Willamette Valley Cancer Institute [main campus in Eugene]: https://www.oregoncancer.com/
Ginger
I am seeking a second opinion. The first surgeon could schedule me by the end of the year, however he does 20 partial nephrectomies a year, robotically. I do not know if that is a minimal, moderate or maximal amount per year. I am hoping the second opinion does more. However, I am not yet scheduled for my second opinion. I have a December 24 appointment at the Cleveland clinic, but If I am confident with someone here in Oregon I will stay here and cancel at Cleveland clinic. Thanks for information every comment helps.
It was 2 centermeters
@dougr19, it sounds like a biopsy before surgery may not be recommended in your situation. Other diagnostic tests have already shown the high liklihood that the mass is cancerous and should be removed. It is likely that once the mass is removed partial or radical nephrectomy depending on what they see once they get in there, the tumor will be biopsied. The information they receive from the tumor will give your team more information such as the stage of kidney cancer. This helps determine if further treatment is necessary and if more treatment is necessary, what treatment is the most effective for your tumor's characteristics.
Have you been scheduled for surgery? Are you seeking a second opinion?
. Very happy to hear your are doing well. How large was the mass on your kidney if I might ask?
Last test to see if it has spread to my lungs. CT scan Thursday evening. All tests should be in. Will get second opinion and ask about biopsy. Appreciate all ideas, prayers and encouragement. Blessings.