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Kidney cancer patients: Let's connect and introduce yourself
I have stage 4 kidney cancer. Taking target and immunotherapy drugs. Would love to connect with anyone who is going through the same process or has kidney cancer!
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A partial nephrectomy does not remove your kidney, it only removes the tumor / growth and whatever portion of kidney it involves. Then they repair it. Robitically is less invasive and not every surgeon is trained how to do this. If he does 20 a year that is one every two or three weeks... which is a good number. You can do a search of his patient reviews sometimes as well. I have had that surgery 2 times, one on each kidney and both are functioning. I am praying that you feel comfort in your decision
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2 ReactionsHi..... have they done a biopsy? I was told they can only tell if it is cancerous from a biopsy culture. Any chance you could get a 2nd opinion before removing your kidney?
Blessings
They want to the partial nephrectomy. They are afraid to do biopsy as it may harm the kidney and be unable to do the partial and lead to radical nephrectomy. It is all percentages. The likelihood of cancer is 80% therefore, they recommend this type of treatment. I will now get other opinions try to make sense of all this. Surgery will most likely take place in the next three months. Thank you for your questions and responses. Blessings.
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1 Reaction@dougr19 Well, the hurdle is over now, wondering what he might say.
Was there any indication of how soon the procedure should be? What about the thoughts of a kidney biopsy first, to make sure it is a tumor to be addressed?
Ginger
They removed the mass and it was cancer. Low grade. They watched grow for two years before they removed it.
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1 ReactionI had my appointment with surgeon this morning. He stated treatment would be partial nephrectomy. 20% chance mass is benign, however “standard of care” is to remove your kidney. I will now traipse around the country looking for someone to do it or May decide to stay with this surgeon. Decisions. Decisions. He stated he does about 20 partial nephrectomies a year, robotically. I have no idea if that is a lot or is too few. My wife, son and grandson have been on vacation this past month. They return this Thursday. They have no idea what has transpired. To have these conversations with you has eased my burden. You all are now part of “my family.” Blessings
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3 ReactionsMy husband was diagnosed in April with renal cell carcinoma. It was in his ureter, the tube that connects to the kidney. He had his right kidney removed. It was an unremarkable surgery. He did well. He has since had chemotherapy. Prayers to you for all to go well❤️
Doug, Ginger
I have 10 days left before I have surgery to remove renal cell carsonanoma from my left kidney. I had pre-op visit this past Monday and was good to go for surgery. I am anxious to get on with it, but sounds like the surgery will take care of it and there is not expected to be any radiation or chemo required like when I had esophageal cancer tumor treatment. I hope the doctor visit goes well. Let us know?
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1 ReactionDid they do a partial nephrectomy or just remove the mass? Did they say what the mass was? I see a surgeon tomorrow. Blessings.
I glad to hear it has not moved outside of the kidney.
Consider all options... but if a tumor is creating havoc on your kidney, even if benign... it's still damaging the kidney. Like my Dr said... "as you can see on the scan , it's something that shouldn't be there "
Prayers