Kidney cancer patients: Let's connect and introduce yourself
I have stage 4 kidney cancer. Taking target and immunotherapy drugs. Would love to connect with anyone who is going through the same process or has kidney cancer!
Interested in more discussions like this? Go to the Kidney Cancer Support Group.
Diagnosed with mass on lower lobe of right kidney via a general back cat scan image. Would like to discuss ultrasound versus cat scan with and w/o contrast and MRI for diagnosis.
Touching base...hoping your living every moment ...present in each moment!
Good Morning To All,
I am traveling around the country telling my brothers what is going on, with my RCC diagnosis. I was in Maine, now in Virginia, I will be going to California next to see my oldest brother who is doing well recovering from prostate CA. Koke, you are constantly in my thoughts and prayers. You were one of the first respondents when I first came to this website. It was so helpful to know someone was listening. At that time no one in my family knew what was happening. Awaiting second and possibly third opinions on my course of treatment.
Blessings.
Good Morning.
I am doing great. Recovery is moving along nicely. Currently, I am in no other treatment. Follow up appointment is Nov 14. Will begin working with oncology to monitor moving forward.
Thank you
Thank you! This sight is very helpful reading everyone’s story.
I had a ‘port’ put in a week ago since getting IV’s continued to be more difficult.
I will continue with my drug regiment till March. At that time, my dr and I will discuss options as long as nothing ‘has shown up’.
I continue to have side effects that are ok but as time passes, the side effect of ‘needing to be very close to bathrooms’ is worsening.
If anyone has found a diet and/or foods they would recommend, that would be helpful.
Koke
@rsd2, I wanted to make sure you were welcomed. I hope your recovery continues to go well. Will you have additional treatments after surgery? How are you doing?
A lot of my friends tell me that they are praying for me and I always thank them. Regardless of their religion, there is a lot of power in prayer. My wife of 44yrs also takes pretty good care of me, and I stay very active with softball and working around the house most every day.
Stay positive and continue your active life. Keep the prayers coming too, as it is the most powerful, non-physical or medical thing, that you can do.
Cool bro blessings to u 250 wow that's pretty healthy u give me hope
Hi. I am now 74 years old and was 67 when cancer came to visit. Cleveland Clinic, after the surgery and the follow-up problems, has had me on Opdivo and Cabometryx for the last 2 plus years and the cancer continues to shrink.
After the kidney surgery, renal cancer cells migrated to my lungs and then to my spleen and pancreas, so that is where the emphasis is now.
Cancer never sleeps so that is something to be aware of.
I was about 250 and lost 60 lbs during the surgery and the after-effects, and am around 215-220, which is a better weight for me.
Sounds like you are on your way, but beware and fight to continue your treatment as long possible, to ensure that all cancer cells that are hiding are impacted...
No chill and see I was in the hospital and when I saw the blob that engulfed my kidney I was not leaving till they got that shit out of me I did not know the protocol I have been taking keytruda and lenvima for almost a year so far the tumor has shrunk and its not in my lungs anymore.