Want to connect with kidney cancer patients

Quite a few of you have connected with @lbrockme in the Kidney Cancer support group. You may wish to check out today's member spotlight and get an inside look at what and who inspires Lynne Marie and why road trips and ice cream are important to her.

– Encouraging hope: Meet @lbrockme https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/encouraging-hope-meet-lbrockme/

Follow the About Connect blog to get updates when new Member Spotlights are published: https://connect.mayoclinic.org/page/about-connect/

I had robotic assisted partial nephrectomy in January.
Bad pathology but successful surgery and back to work in 3 weeks!

Welcome, @dwitthuhn66. I encourage you to start a new discussion in the Kidney Cancer support group here: https://connect.mayoclinic.org/group/kidney-cancer/

I suggest a title like "Robotic Radical Nephrectomy: What can I expect?" or something similar.

Thank you

Hi all,
There is now a support group dedicated to Kidney Cancer on Mayo Clinic Connect. See here:
- Kidney Cancer Support Group https://connect.mayoclinic.org/group/kidney-cancer/

Connect with others like you for support, practical information, and answers to your questions about kidney cancer (renal cell carcinoma). Follow the group to be notified when new posts are made.

cc: @lauragarrod @bomed @nang @thewife @sally0526 @collegeprof @pcondon @cindysummit @hj83 @koke @emily29. @bomed @b1375911 @racing212 @lkhanson @pml @azkidney57 @w5wiggi @paulinlouisiana @mb4414 @pamcaponio @tenniswood @mrodriguezc @dougr19 @2ndjourney @lbrockme @drmarci @buckeyeveteran @podrunner1 @dwitthuhn66 @am1974 @leeb123 @2ndjourney @doublecancer @twobeb87 @dustyeubie @olive60oil @surbhi1 @cindyc @hj83 @douglasfeb15 @lkhanson @momsanurse @mb4414

Pull up a chair and introduce yourself if you haven't already.

I'm newly diagnosed with ureter cancer. I'm having a radical nephrectomy May 15th. The procedure will be done with a robot.
Anyone else experienced with this?

Absolutely! Day by day…I’m enjoying each one! We are blessed!

I have also noticed short-term memory loss on cabometryx (I have been on it 2 1/2 years). But, like you, I am willing to endure the occasional diarrhea, nausea, skin irritation, etc to have the success I am getting. I am 74 and forgetting an occasional name is not too bad for the positives received.

I had my left kidney, ureter, and bladder cuff removed in late June of last year. My surgery was robot assisted and I was released the same day. The pain wasn't that bad at all and didn't need any pain meds after a few days. The only issue that I've had post surgery is fatigue. I deal with terrible fatigue most days. The Upper Tract Urothelial Carcinoma I have is very aggressive and was already found in my urine in the fall. I'm not worried about it though. Everything is in God's hands and when it's my time, it's my time. No sense in worrying about something that you can't control. I pray that everything goes well for you and many blessings to you and your family. 🙏🥰🤗

Everyone who responded covered the things that happened post surgery…it’s amazing how much I’ve forgotten over the year and half since kidney removal! I blame my memory on the strong chemo drug (Cabo) and immunotherapy IV (Nivo). As long as it keeps the cancer away, I’m good with a bit of a lapse of memory:)
Prayers are with you and all of us! Prior to surgery, I was very scared about surgery and life. I’ve had so much done since my kidney removal, any surgery/procedure doesn’t affect me and I am very spiritual knowing I’m being taken care of! Praying is amazing for me!