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Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?
My dad has had this diagnosis for years. He is 86 years old. He Was treated with “infusions” forever…idk the name of med. Recently however..a new oncologist prescribed zanubrutinib…2pills twice per day. I believe the highest dose but I could be wrong.
After 1.5 weeks my dad couldn’t tolerate the side effects any longer. He lost his appetite, a significant amount of weight, he had Chills, and extreme fatigue.
Doc has since taken my dad off the meds and will see him next week.
Soooo…..does anyone have any experience with a similar situation? Thank you in advance
Am I crazy to request he go back on the infusions?
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Taking it for CLL for 10 weeks
Working well
Currently diagnosed with Waldenstrum ( blood & bone), taking Burkinsa & seems to be helping..wondering if anyone here has a similar experience & also if Brukinsa only treats Waldenstrums OR is it used for other types of cancer...sincere thanks!
@kabue9, I moved your question to the Blood Cancers & Disorders support group to this discussion:
- Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?https://connect.mayoclinic.org/discussion/waldrenstrom-macroglobulinemia/
How is the pain in your stomach?
Great comments . Thanks
I am a 75 year old male on Brukinsa (Zanabrutinib) for the past 16/17 months and have not had any stomach pains. I too have dealt with periodic constipation throughout the duration. I find good nutrition and exercising as much as possible greatly help with this. For the odd 'stubborn' instances, I'll eat a couple of prunes which certainly does the job.
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1 ReactionI’ve been told not to take anything for pain but Tylenol for pain. Ibrpropen may be cause of some stomach pain. Very irritating . Check with doctor though
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1 ReactionRecently diagnosed with WM...78 years old & healthy my entire life..being treated with Brukinsa..wondering why I have so much stomach pain..lots of tests & all docs say its from the opioids & then constipation..stopped the opioids & not constipated anymore but still have stomach pain....what causes this...how long does it take for the bowels to heal & find pain relief? Meds I take are ibuprofen for pain but no relief...any advice is greatly appreciates.
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1 ReactionNo Zanubrutinib is my first treatment after my diagnosis. My drs at Penn Medicine say that it was so effective at relapsed MCL that they are trying it as a first line treatment.
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1 ReactionI have no other medical conditions.
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2 ReactionsI am fatigued and have limited internal drive. My extremities often are cold.
Periodically, I have to deal with constipation.
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