Waiting on a diagnosis, will it help?

Posted by pacodennis @pacodennis, Nov 6, 2022

I have idiopathic PN and am starting to get test results. I had a MRI
( cervical neck ) ( brain ). I saw an Orthopedic Dr. also, that took x-rays and had the MRI to view. They do not think I will require surgery. The pain level is an average of 6, going up to 8ish for hours at a time. It is 24/7. My next test is Nov. 15th, an EMG. Then I will consult with the neurologist. This nerve damage has completely changed my life. I am sleeping about 4 hours a day. I am 70. I don't think it is all that unusual to be experiencing difficult health issues. The coping strategies help, and I am trying not to increase any meds for pain. I use some THC to help, but this is really tough sometimes. Keeping a positive attitude is very very hard. Anybody know of some mental exercises to help stop negative thinking/feeling?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Hello @pacodennis, You are right about keeping a positive attitude can be hard or difficult at times. There is a Page (blog) dedicated to Mindfulness here on Connect that may be able to give you some ideas on helping reduce or stop the negative feeling and thinking.

– Health and Mindfulness https://connect.mayoclinic.org/page/mindfulness-in-health/

The above page contains several articles in the newsfeed guiding mindfulness practices. In the tabs, you'll find additional resources including videos. Have you ever tried mindfulness?

REPLY

I wish I had more acceptance at 72. I get bummed out by stories of folks living active, healthy lives into their 80’s. That’s really how I envisioned it for myself. I haven’t really been helped by any of the traditional meds for symptom relief yet. Still hope that something new comes along to change things for the better. But it doesn’t seem that likely.

REPLY

Hi.. I'm curious if anyone on here either has, or had, a bronchal stent put in? I'm aware that my doctor is considering this because the mass is pressing into my right bronchal tube a bit. (still not diagnosed as cancer, but I should know for sure within a week or so as I had a biopsy done)

I obviously hate the idea of a stent, but I just don't know how big of a deal it is. They did say it wouldn't be "permanent". Once again I've had to stop Googling this stuff because all you get are the worst cases and stories about all of the complications and poor prognosis etc.

REPLY
Please sign in or register to post a reply.