Vesicoureteral reflux (VUR) in 5 yr old: Confused about options

Posted by jessicag27 @jessicag27, Sep 2 10:42am

My daughter was finally diagnosed with a right duplicated kidney with reflux grade 2 and 3 in this kidney along with ureteroceles.. she has had 8 utis since September of last year with most of those being from Sept to March with one recent one the beginning of August. She gets 104 and 105 fevers with vomiting and pain with all of the infections. She's had one documented kidney infection. I have been told she does not need surgery at this time because they think it is superficial and it's not really there. She also has a fatty liver along with constipation. They have told me that constipation will cause utis which were on miralax and xlax for this. The urologist has told me that the surgery will not help unless the constipation is under control because she will still get utis but not kidney infections… her right kidney is smaller then the left. My question is should I get a second opinion? The nephrologist is wanting to do surgery but the urologist does not and he is the surgeon who does this specific surgery.

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Hi @jessicag27. Oh, this must be so much information to take in. And very confusing when you get differing opinions from medical experts on what to do next.

This is a perfect situation for getting a second opinion. If Mayo Clinic in Rochester is a possibility for you, I highly recommend Mayo Clinic Children's Center https://www.mayoclinic.org/departments-centers/childrens-center and their specialized Pediatric Nephrology Clinic (https://www.mayoclinic.org/departments-centers/pediatric-nephrology-clinic/overview/ovc-20465380)

Let me know if you have any questions about submitting an appointment request. See more info here: http://mayocl.in/1mtmR63

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