1. < Gynecologic Cancers

Vulvar Cancer: Anyone else?

Posted by ali1974 @ali1974, Nov 12, 2020

Hello:
I have posted on other discussion group about my struggle with my health, previous cancer stories and concerns for my genetic history. I can’t seem to get a break. I just had a biopsy today to rule out vulvar cancer. I honestly didn’t even know there was such a thing. Has anyone been diagnosed with this and is it more common than what I have been reading?
I am BRCA2 and MSH6 positive. 2 time breast cancer and ovarian cancer survivor I have lived a drug and alcohol free life it just doesn’t end!

Alice

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

Moderator
Colleen Young, Connect Director | @colleenyoung | Sep 4, 2021
In reply to @wheaton "Hi, I am new to this site and trying to find other women who have had..." + (show)
@wheaton

Hi,
I am new to this site and trying to find other women who have had or have vulvar cancer. I realize it is rare and there is not much information on it, but I am currently still having long term effects from radiation and was wondering if anyone would be willing share info. Thanks, Trish

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Hi Trisher, I was just about to head off to bed when I saw your message. Let me start by saying welcome. Vulvar cancer is rare. But there are several members who have had radiation for vulvar or other gynecological cancers that you can connect with here like @ali1974 @samaco @naturegirl5 @vsinn2000 @stoligirl and @miriam57

You may also be interested in reading this older discussion:
- Radiation therapy for vulvar cancer https://connect.mayoclinic.org/discussion/radiation-therapy-for-vulvar-cancer/

Trisher, how long ago did you have radiation? May I ask what long-term radiation effects you're still experiencing?

REPLY
Trisher | @wheaton | Sep 4, 2021

Hi,
I am new to this site and trying to find other women who have had or have vulvar cancer. I realize it is rare and there is not much information on it, but I am currently still having long term effects from radiation and was wondering if anyone would be willing share info. Thanks, Trish

REPLY
2 replies
Moderator
Colleen Young, Connect Director | @colleenyoung | Dec 22, 2020

Hi @ali1974 Alice,
I'm wondering what you found out from the results of the biopsy. Did it comes back positive for vulvar cancer?

REPLY
ali1974 | @ali1974 | Nov 18, 2020

Thank you Samaco, I am still waiting for the results.

REPLY
samaco | @samaco | Nov 17, 2020

Hello Alice. I have no similar experience, but I want to offer my best wishes to you in getting the answers you need and finding others with similar experiences.

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ali1974 | @ali1974 | Nov 12, 2020

I would like to add that I’m 46yrs old, married and have 2 daughters. I don’t understand why I may have this because I have never has a STD or anything. I’m so perplexed by it all.
Thanks for listening!
Alice

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