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Vitamin B12 and Neuropathy

Posted by lorirenee1 @lorirenee1, Dec 9, 2019

I went to my Neurologist and saw the nurse, because my neurologist had to cancel all her appointments. The nurse went thru all my blood work, and said my B12 is way too low for someone with Neuropathy. She repeated that B12 test, and again it is low. Because it is in a low, but normal range, 2 neurologists, 2 pain specialists, and 1 primary care physician of mine, did not catch that it was low. Only this nurse did, and now I need a week of daily Vitamin B12 shots, and then weekly, for a month. If you have neuropathy, B12 level should be at least at 400. Mine is at 185. I am praying Vitamin B12 helps. I really know nothing about Vitamin B12. Just found out mine is way too low for neuropathy. These doctors need to read the actual numbers, not just the highlights of what blood work is out of range. Maybe this could have been caught 2 years ago. I don’t know if Vitamin B12 will help, but I am giving it a try. We all go thru so much…. Lori Renee

peggyn | @peggyn | Dec 31, 2019

I've been told mine is from pinched nerves in lower back. He thinks surgery can help. I haven't decided anything for sure yet.

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Lisa Lucier | @lisalucier | Jan 1, 2020
In reply to @goldleaf "You are so very right on that observation. I wish I could spend more of my..." + (show)
@goldleaf

You are so very right on that observation. I wish I could spend more of my laughing. I wish I could spend more of my time doing something other than what I have to deal with. I find listening to comics who are in some pain themselves, make me laugh the most. They seem to have the best and most down to earth out look on life. For some reason, I can always spot people in pain.

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Hi, @goldleaf – thanks for the reminder of the value of laughter. If you've not yet seen this Connect discussion on humor as a coping tool, you might be interested and have some input to contribute there https://connect.mayoclinic.org/discussion/humor-as-a-coping-tool

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lorirenee1 | @lorirenee1 | Jan 1, 2020
In reply to @rwinney "Correct, those areas only but, has not touched the neuropathy damage. I'm told that means the..." + (show)
@rwinney

Correct, those areas only but, has not touched the neuropathy damage. I'm told that means the damage wasn't caught early enough. Orrrr, it's all a just one big farce. Hah, we'll never know. I'm going with… a Major in Idiopathic and a Minor in B12 deficiency. Haha

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@rwinney Rachel, I'm going with it's all a major crapshoot, and the doctors know its a major crapshoot. They do the best they can. Just no advances in this painful disease!!!! In the meantime, try to have the best New Year. Lori

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rwinney | @rwinney | Jan 1, 2020
In reply to @jakedduck1 "@rwinney Wow, so the increase really helped you. I have had a B-12 shot occasionally but..." + (show)
@jakedduck1

@rwinney
Wow, so the increase really helped you.
I have had a B-12 shot occasionally but never on a regular basis. I’m going to ask my doc to test me. Maybe then I can find out if I’m deficient in B-12 or just lazy.
Thanks for the information @rwinney.
Jake

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No problem.

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rwinney | @rwinney | Jan 11, 2020

Hi Lori Renee
Thinking of you and wondering how you're doing?Have you noticed any changes with b12 supplementation?
Rachel

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