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Sheryl M Ness, MA, RN
@smness

Posts: 76
Joined: Sep 25, 2012

Virtual Cancer Survivorship Series - Please Share Your Thoughts

Posted by @smness, Jun 17, 2016

Hi everyone, I am an educator and manager of the Cancer Education Program at Mayo Clinic. We are just in the process of designing a Virtual Cancer Survivor Series to be posted on this site – hopeful to have this later in the year. I would love your feedback on the model and ideas.

Overview
This program would allow cancer patients to access online from anywhere with a virtual online survivorship series. The program will offer the patient, family and friends the opportunity to renew, reflect, and gain support while on their individual journey after cancer treatment is completed.

The series will focus on key areas to enhance individual’s health and the opportunity to develop an individualized self-care plan from a holistic perspective while utilizing autonomy. Through this program we strive for participants to learn powerful ways to optimize their body’s healing potential (mind-body-spirit) while honoring their own healing journey after a cancer diagnosis.

This is what we have outlined for the first three sessions – we plan to add on to this for phase II.

Session 1: Transitions After Treatment Ends
Featuring:
• Managing short-term side effects
• Reconnecting with family and friends
• Returning to work
• Creating a new life routine
Media: Short video, links to key resources and group discussion

Session 2: Emotions: Mind + Body Connection
Featuring:
• Fear of recurrence
• PTSD and cancer
• Relationships
• Reconnecting with your partner
• Stress relief and mind-body connection
Media: Short video, links to resources and group discussion

Session 3: Healthy Nutrition + Eating Habits
Featuring:
• Survivorship nutrition focus
• My Plate, Mediterranean and plant-based diets
• Meal planning
• Recipes
Media: Short Slide deck, links to resources, meal planning ideas and a place to share recipes. Introduce wellness coaching concepts.

REPLY

Hello Sheryl, I received your e-mail meant for Sheenah. I did send her a e-mail also, but never heard back from her. This is Lacey, and I have been there and done that. Thanks, I read your information regarding a series of articles on cancer. I will be looking forward to learning a lot more than I know with these articles. Lacey

I think this is a good idea. When I look through the daily digest, this is the kind of information/sharing I’m looking for (and don’t often find).

Liked by Ali Skahan

Hi Cheryl. I’ve been a part of your program since 2009 when my Islet Cell Cancer was diagnosed. Since I sought to learn and understand as much as I could, not to worry, but to know what I’d face and prepare to face it. One item among many that I’ve picked up is “most of your noted cancers relate to women.” Is that statistacally true as to which gender gets hit the most. Another item is relative to benign and malignant cancers. Yes, my Islet Cell was malignant and then mestasized to the liver, spleen, GI and GU tracts, where the Oncologis changed it to Pancreatic Cancer because it had mestacised to other area’s and organs. On the other hand, Tuberous Sclerosis which I’ve had since 13 and was indicative of brain tumors in 1997, caused my retirement, etc., since you never know which way one in the brain will grow or the area it will affect–even though mine was Tuberous Sclerosis on the brain, it took away some abilities and caused other problems. As I studied these things over time, I also learned that Tuberous Sclerosi although said to be benign, was also a carrier of Islet Cell, likely because it was endocrine related. Those may be little items, but would likely shed some light on items related to cancer symptoms, treatment, adverse affects and even the points at which some cancers grow in relation to others. Islet Cell is a slow growing cancer; my father died from Pancreatic cancer that he didn’t even know he had and my mother passed away from lung cancer–that she was so affected with “all they could do is close her up and let her die.” Some of those things can give people a hint on the importance to recognize when to get a CBC or see their doctor. After all, time can often be of the essence in pursuit of this disease.

irvkay312

Hi Irvkay312, so sorry regarding all the loved ones “lost” to this cancer ailment, it shows me one thing
God only gives people what they can handle, that may sound optimistic, but I believe that God is in control
and we thank him for the doctors that can help us through a rough time. I have been “cured” since Jan. 2015,
but that doesn’t make me in control, I am still very tired, but no pain involved. I pray it never comes back, but
that also is up to the “boss”. Stay strong my friend, and always know you will come through this period of health
problems in your lifetime. God Bless. Lacey

Hi Sheryl, your post sounds promising to all of us cancer survivors ( remission ), I for one will be looking forward to discussions
on the subjects you posted. I do have some difficulty getting into the right thread to communicate, but I will try them all until
I find you. Thanks, Lacey

Sheryl, here’s a document generated by the University School of Nursing titled “Removing Uncertainty for Cancer Patients and Survivors” that touches on some of the things you list above. UNC seems to be heavily involved in understanding and treating the social impact of cancer diagnosis as well as the medical.
http://nursing.unc.edu/files/2012/11/ccm3_030538.pdf

@johnwburns

Sheryl, here’s a document generated by the University School of Nursing titled “Removing Uncertainty for Cancer Patients and Survivors” that touches on some of the things you list above. UNC seems to be heavily involved in understanding and treating the social impact of cancer diagnosis as well as the medical.
http://nursing.unc.edu/files/2012/11/ccm3_030538.pdf

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Your right John, I still have nightmares that my cancer will return, I changed a lot of the “poisons”
I was doing ( like eating a lot of sugar ) , it was difficult because , I love candy. and my blood work
has been clean, so I just have to learn to ” let go” and think positive. Looking forward to Sherlys
information. Lacey

I would like to see this thread continue. I think it woukd really help me.

@mryzuch

I would like to see this thread continue. I think it woukd really help me.

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Hi, welcome to the cancer thread, is there anything I can help you with, I had stage 4 non-hodkins
lymphoma, my experience is the only subject I can comment on. Lacey

@mryzuch

I would like to see this thread continue. I think it woukd really help me.

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Welcome to Connect, @mryzuch. We look forward to getting to know you. Would you mind telling us a bit about yourself? What type of cancer treatment did you have? What issues are you facing today?

@mryzuch

I would like to see this thread continue. I think it woukd really help me.

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I had stage 3 lung cancer. They rrmoved the lung and some lymph nodes. I also had chemo after the surgery. Than i had cervical cancer and had a hysterectomy. Now i have psoriatic arthritis and have to have a hip replaced. I am actually doibg pretty good right now but i do worry about devoloping another cancer or having the lung cancer return in the other lung. . Thank you for welcoming me to the group.

Liked by judy1940

Nice to get to know a bit more about you mryzuch. You may wish to join this discussion with @burrkay, who’s wife has Stage 3 lung cancer. I bet he would like to hear from someone who has been there https://connect.mayoclinic.org/discussion/my-wife-has-had-stage-iiib-lung-cancer-she-had-2-lobes/

If you’re interested in meeting people to talk about psoriatic arthritis or hip replacement, check out the Bones, Joints and Muscles group https://connect.mayoclinic.org/group/arthritis-and-joint-conditions-268850/

I think a lot of people worry in silence about cancer coming back because they don’t want to worry their friends and family or saying it out loud is too fearful. I wonder if you would like to start a new discussion on that very topic? A forum like Connect is a safe place to have such a frank conversation. I’m confident other members will join in.

Here’s how to start a new discussion https://connect.mayoclinic.org/get-started-on-connect/#how-to-start-discussion. What do you think?

Liked by kareniowa

I can’t point to any studies that will boilerplate the relationship, but I have known a number of cancer patients, of multiple types, who said that a major life stressor preceded the onset of their disease. The relationship between stress and heart disease is firmly established but with cancer I think less so, but eventually will. Trying to minimize the impact of major life events should probably be a goal in cancer prevention like it is with heart disease.
Here’s a general doc from MD Anderson about it.
https://www.mdanderson.org/publications/focused-on-health/december-2014/how-stress-affects-cancer-risk.html

This looks very good-I’ve just passed the 2-year mark for breast cancer with a clean mammogram. I reallly don’t need to hear about nutrition one more time-it’s all over the Web and it’s the same stuff everywhere. You might want to make that section mainly links to some of the many, many other discussions about a healthy diet. Going through everything yet again looks like padding the site.
Please keep the focus on things cancer survivors want to know and talk about that we can’t get elsewhere.

Happy to hear of your good fortune, I also have been in remission for over a year, but there are others that have just gone through what we have already done, so I guess it is for their sake the same subject if repeated over and over again. Lacey

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