Acoustic Neuroma: Auditory symptoms are overwhelming

welcome,
don't see things as they might be it, can drive you crazy. try less to
worry and pick up something you enjoy and do it.
waiting for information sucks but till you know for sure occupy your mind,
join a prayer group and get some joy in know there, are some really big
groups out there and smile, another day to say hi and I love you to someone
special.
have a blessed day.

@tamietann - my MRI is Monday. Scared but will be glad to get it over with. If the outcome is not good, at least I’ll know where I stand. I am tired of pain in my head.

@maniacjc that’s a lot you’re going through. I hope it improves for you. You’d probably still beat me at golf! 😂

Glad I found this group. I experienced the fullness, tinnitus, vertigo, dizziness. MRI is a week from today. In the meantime, prednizone shots in ear just in case it's not the tumor. But so far, the shots are not working. I'm very nervous about the MRI and the possible results. It seems like a lot is unknown with this type of tumor.

I had a surgery 2 years ago, they were only able to remove a little bit as the rest was covered in nerves and wasn’t able to be removed. I lost my hearing and knew in advance. Plan was a cochlear implant but it was damaged by the surgery. I had a bone anchor hearing aide put in but I don’t recommend it if you have normal hearing in your other ear. It’s just a tinny mess. If you can’t hear it’s a miracle. So far I have permanent dry eye on the same side. I then went to oncology where they did six weeks of radiation and after six months it showed it’s grown a little. Huge balance issues, constant head pain, my two hobbies have suffered, can’t really play guitar like I used too and my golf game has added 20 strokes to my score, I guess I’m glad I’m here not sure what’s next I feel for my wife!

My daughter just had surgery for an acoustic neuroma using the middle cranial fossa approach. The surgical team was surprised to find that the growth around her vestibular and auditory nerves was not an acoustic neuroma but a ganglion cyst. It is extremely rare to have a ganglion cyst in that location. Has anyone else had experience with this?

Yes, it could be an age thing. My daughter is 36. Still worth asking though. She is having the surgery done by a highly regarded specialist in Poland. But the technique is practiced widely in the US also. They do it at Mayo. Good luck with everything. Brian

Thank you for the information. It might be my age, I am 74. I had not heard of this approach. Where in Europe is your daughter going? I wish her the best possible outcome. ~ Kathy

I’m also a Mayo Jax Fl patient. I had Gamma Ray done a year ago February. My hearing in my left ear is totally gone but the tinnitus is bad. I use small bud in my left ear at night with white noise to distract the left ear noise. I wear a hearing aid in my right ear to help and now a Bi-cross in left ear. Sounds on left side transmit to right ear aid. I was 76 when diagnosed and in excellent health but the surgery is extremely long and involved and not recommended for me.

The House ear institute in L.A. has the most experience wit acoustic neuromas. The current treatments were developed there. They have a team approach that moves smoothly