Vestibular migraine: What symptoms do you experience?

Posted by klhe @klhe, Aug 12, 2018

good day members,

Johns Hopkins diagnosed me with vestibular migraine a little over one year ago. Prior to that no one knew what I had and I saw ENTs, neurologists, and many other Dr.s. MRI of close to two years ago shows all is normal. However, despite a respite of feeling almost normal for three months while taking a new medication (Effexor extended release at 75mg.) all of my symptoms came back full force for what I call episodes, at least once a week, and lasting up to three 3 days in bed. My symptoms for the last two years have been: popping ears, nausea, vertigo at the beginning which seems to have gone away and been replaced by dizziness and light headedness, tingling all over head, severe headaches, weakness to almost numbness in my arms, and severe fatigue. I can feel like a pressure in my head at times. I have not lost cognitive functions: that only occurred when I took Topiamate. My internist wants me to see a specialist at the Mayo Clinic, but I wonder if anyone else has experienced what my Hopkins Dr. calls very atypical VM symptoms?

Interested in more discussions like this? Go to the Headache & Migraine Support Group.

katcollins | @katcollins | Sep 28, 2023

If you try migraine medication it should reduce the symptoms. I’ve been on Nurtec and it has helped quite a bit. I can walk and function much better. I still have to take turns slow, bending and standing slow, and stop and breathe when I get overwhelmed. But it is worth a try if you can’t find relief. I was experiencing daily migraines and finally started medication. Best of luck to you.
Kat

Colleen Young, Connect Director | @colleenyoung | Sep 28, 2023

In reply to @terryjoe "Anyone suffering from vestibular migraines? Trying to confirm my diagnosis and share symptoms" + (show)

Hi @terryjoe, people are talking about vestibular migraines in the Brain & Nervous System support group. I moved your question to this existing discussion so you can connect with others and read previous posts:
- Vestibular migraine: What symptoms do you experience?
https://connect.mayoclinic.org/discussion/vestibular-migraine/
Type “Vestibular Migraine” into the search bar to find additional discussions like these https://connect.mayoclinic.org/search/discussions/

What symptoms do you have that have led you to confirm or rule out a diagnosis of vestibular migraine?

terryjoe | @terryjoe | Sep 20, 2023

In reply to @terryjoe "Anyone suffering from vestibular migraines? Trying to confirm my diagnosis and share symptoms" + (show)

Thanks. Starting tomorrow

mikayla | @mikaylar | Sep 20, 2023

In reply to @terryjoe "Anyone suffering from vestibular migraines? Trying to confirm my diagnosis and share symptoms" + (show)

Try physical therapy. They can help you with balance and stretch and massage your neck.

terryjoe | @terryjoe | Sep 17, 2023

In reply to @covidstinks2023 "God Bless You! I have had migraines (not vestibular) all my life...since a child. I have..." + (show)

Thank you so much for your input. I have just recently noticed that humidity and rain is worse for me!
Thanks for your prayers…

covidstinks2023 | @covidstinks2023 | Sep 16, 2023

In reply to @terryjoe "Anyone suffering from vestibular migraines? Trying to confirm my diagnosis and share symptoms" + (show)

God Bless You! I have had migraines (not vestibular) all my life...since a child. I have to honestly say, I believe taking B2 daily has helped me greatly. I know, it sounds to good to be true. I started it 3 months ago and I have had the least amount of migraines this summer that I have had in a long time. Usually, the high humidity like this summe is brutal for me and migraines. I also take magnesium 200 mg daily which is supposed to help with migraines. Talk with your doctor about the supplements first. Praying for you. Migraines are miserable!

terryjoe | @terryjoe | Sep 16, 2023

Anyone suffering from vestibular migraines? Trying to confirm my diagnosis and share symptoms

frobvt | @frobvt | Jun 3, 2023

In reply to @cmg "Hi frobvt, At the top of this page, there's a way to send a private message...." + (show)

Cmg, that's great! I'll take a look, and I definitely will call.

cmg | @cmg | Jun 3, 2023

In reply to @frobvt "Hi cmg, Thank you, you're very welcome! When I was 6 months post-concussion, my head still..." + (show)

Hi frobvt,
At the top of this page, there's a way to send a private message. I just sent one to you with my phone number. I'll be around most of this weekend. When the time is good for you, if you want, you can call.