Venting & also asking for opinions

When they do the AUS, they have to pick a cuff to put around the urethra. If they pick a cuff too big it would leak more than one that was the right size for you. That may be what’s causing this problem.

You could ask the doctor about that. I’m not a doctor, but that’s one thing I’m worried about when I have mine put in, in June.

@jeffmarc Thanks, Jeff.

I was hoping to go in for a cystoscopy (probably the only guy that actually wants a cystoscopy) to see what's going on.
Oh well. I'll keep going with the spreadsheet & see if that horrifies them enough to do something.

Peterj116, It's obvious that you're in a pretty rotten spot.
If I were you, I'd consider reviewing my whole PC care team; urologist, surgeon, and whoever else for second opinions. Yeah, it must be like starting over. Sad but true.
I was lucky that my urologist and surgeon were closely connected. My surgeon is top notch. He had a resident ("trainee") do the actual surgery. But he/they took their time (4 hours) and surgeon showed resident the very best procedure.
You probably can't replicate that (nor could I in another, similar situation). But there's a chance you'll have to consider getting a new, correct size cuff installed. So another major surgery you sure don't want to do.
You're probably correct that you should get (request?? demand??) that cystoscopy; another unwanted bummer.
You - and of us all in the PC club - deserve better on this life long battle.
Damn the torpedos, full speed ahead! Praise the Lord and pass the ammunition! Or whatever cliche you want. It's a life long challenge and fight and we're all praying for you and willing to help.

I second the idea of getting a second opinion. If that's your urologist you are quoting he/she appears to agree: "if its changing then certainly worth re-evaluating". You appear to be describing a situation that is getting worse.

The statement "he could trial solifenacin if there is any hint of OAB" isn't a re-evaluation, its a suggestion of one thing to do if a re-eval indicated treating for OAB.

Your mileage may vary, but if it was me, I'd supply the evidence I had for things getting worse and ask for the re-evaluation. If I was losing confidence in the docs I had, I'd get the re-eval from someone else.

Thank, guys.
That note was written by a urologist that I've never dealt with before.
I just looked him up online, He looks about 12.

Joined the Fellow of the Royal Australasian College of Surgeons in 2025.
Hope I don't get him in May.

@peterj116 Don’t knock the young’uns Peter!😂. Sometimes these newbies can bring a fresh perspective to your treatment.
We learned procedures in dental school that the ‘professors’ who were teaching us to perform either couldn’t or wouldn’t do in their own practices.
They were set in their ways and not ready to change. Scary that they were the ones teaching us something they did not believe in, right?
I know you’ve been struggling with incontinence since your surgery so I hope someone new can help you. Best,
Phil

@heavyphil Well, at least he's got a bit of time to grow up, before I see him.

You have been added to the Urology outpatient waiting list with a priority of P3.
Currently half of the patients referred to Urology with a P3 priority are seen within 38
weeks.
A member of our booking team will be in contact with you to arrange an appointment.

@peterj116 OMG!! That totally SUCKS…how can you have ANY faith in a system that treats you like that?
Not saying the healthcare system in the US is perfect - far from it! - but prioritizing medical needs in the same way as waiting on line in the deli department of a supermarket is really really awful.
I know we’ve discussed the medical system in Tasmania before and I think I asked you about seeking care on the mainland…still not an option?
Phil

@heavyphil I'm in New Zealand - different country.
Hospitals are free (paid by taxes) although there are private hospitals, but health insurance is expensive & cover a small fraction of the cost, so not worth it.

They usually over-estimate the waiting times, anyway.

Medicines are generally funded by a government department called Pharmac - which assess each drug & chooses what is funded.
Consequently, most medication costs $5.

@peterj116 Sorry for the geography error. Hope they see you sooner