Mayo Clinic Connect
Hi! Has anyone discovered that what they thought was deep bone, or intense muscle pain and throbbing was actually due to a vascular disease of some kind?
I apologize for the delay in response. If you are comfortable, would you mind sharing a bit more about the pain? Could you describe the pain in more detail? When you say deep bone pain, which bones are you talking about? Is the pain worse when active? Is the muscle pain worse when you use those muscles? Describing the pain in a bit more detail might help other members make a Connection to share his or her experiences with you.
I had extreme pain in my upper stomach area. I always had stomach issues and just thought this was a bad one. I finally decided to go to er to get some pain relief. They order ct scan and I was like no just morphine…Well scan showed that my celiac and superior mesenteric arteries were narrowed and should be looked at by a vascular surgeon. I never heard anyting about this. So my primary referred me. They did a special ultrasound. Dr. said I needed open surgery right away. My stomach could die, and / or serious damage, I could die. That was a shocker. Still had no idea of the seriousness of my situation. I was a special ed teacher and told them I would be out for a month. That was Feb. 2014 and I am still not working. Basically my diaphragm was smushing the arteries they found when they went in. It was a big surgery, icu for 3 or 4 days then a week in hospital. Couldn’t get out of bed on my own. Basically my surgeon said I was cut in half and everything out on a table. The reason I say this is because I later found I have sibo and believe this is from the surgery. I continued to have pain and found they were narrowing again. Sept 2015 I got two stents put in. I couldn’t do another open surgery due to my health being so bad. Continued having pain and hard now to tell what is from arteries and what is the sibo. I know the bloating is the sibo.
I say this because you never know and should get the vascular checked out. I never would have if it wasn’t for that visit to the er and the dr. pushing the scan. I don’t know if this helps in any way……It is called MALS, or chronic celiac/sma artery stenosis. Could be different arteries…..
@nanke99 reply hi I’m virtuous 69. I had strange crabbing pains in my lower legs as though they really were way deep and inside veins so I went to my PC who sent me to all the type of doctor that checks your your veins to see if they’re clogged …came out absolutely clean. No definitive answer
from this leg pain doctor so I was very frustrated. I had also developed an orange skin peel type rash on my ankles and across the bridge of my toes that was very unsightly ( turned out to be iron deposits under the skin of my feet and anckles and unrelated to the throbbing deep inside my calves.) but anyway my legs seem to be okay but that did worry me. I agree with you and felt like it was Way deep, inside and touching my calves is tender….off and on. Go figure. today I’m going to physical therapy for leg massage to loosen muscle and irritated veins. These new
mystery ailments that crop up absolutely frustrate me and may disappear over night only to come back months later. Best of luck to you.
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@jmmb Hello. Your post sounds scary. I,ve had upper abdominal pain for years that usually has flare-ups. My PC told me I have an adominal hernia of my esophagus going into my stomach. Also have digestive issues and PC thought I have acid reflux. Anyway the scariest thing I’ve encountered in doing some mild exercises in that involve lifting your legs was that it. I twisted and intestine and laying flat at night several times in my adult life it would feel like the intestine was trying to go back to the original position and it was the most painful thing like childbirth that I’ve ever experienced in my life I literally screamed and screamed and screamed. Have never done anything about it but I can tell when my intestines are going through an IBS flare up as my bathroom issues so very very slender ribbon like I try to eat lots of fiber but not the wrong kind I can’t digest things like broccoli or cauliflower. So since I don’t have this all the time I just live with the flaps wonder if exercising kind of like a mile setup of sorts turns my in my intestines around and it is can be very painful even doing bathroom elimination from time to time.My gastro doc who did routine colonoscopy explain to me that upon eliminating the intestines will enlarge and then after you have gone to the bathroom they shrink back to normal size and that can be very very irritating and painful. I,ve text my PC if I could have an ultrasound or scan of my intestines because for some reason I don’t think something is right I think there’s a lot of scar tissue from operations causing problems but that’s never been ordered for me and I just deal with it not wanting to add another disease situation to my shopping cart of troubles. Wishing you many blessings and hope there will be no more reoccurring problems. Signed virtuous 69
@virtuous that is really weird. Never heard of anything like twisted intestine. How did they diagnose that? Is there nothing they can do for you. I don’t understand why they wouldn’t just do an ultrasound to start. I get it though, who wants to put another condition to long list of them, but that just doesn’t sound ok.You said other operations, what kinds if you don’t mind me asking. If abdominal types, you should get tested for SIBO. It can cause so many different symptoms. Good luck to you.
@virtuous I just thought of one more thing. I found out my diagnosis from going to the er. They did the ct scan and it went from there. I would suggest that next time you are in pain you go to the er and I would be surprised if they did not do some kind of scan. If you haven’t already done that of course…If you do please let me know what happens. You have to be your own advocate unfortunately. I am fortunate to have a wonderful pc. She didn’t know about SIBO and she was happy to learn anything from me so that she could help others. She said they never taught that in med school, and she is young. She said if a doctor isn’t open to your ideas and listen, they are not for you. As long as you do it with tact…..
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