Valacyclovir for Chronic Active Epstein-Barr and Fatigue?

Posted by jameskanchorage @jameskanchorage, Apr 12, 2023

Hello,

Has anyone in this support group have or have had Chronic Active Epstein-Barr and/or severe fatigue due to EB? If so, has anyone been prescribed Valacyclovir (Herpes Antiviral medication)? Did this provide improvement? Per my request, my doctor just prescribed me Valacyclovir for 10 days. This is based on my own research and online posts.

I had heart valve replacement surgery 2.5 years ago (which I do regret as you will read below why). Since surgery I don't respond to anti-depressants. In addition to the treatment resistant depression that started post surgery, I have experienced cycles of cold/flu symptoms (which started a year ago). The ongoing effect of these cycles has been drastically increased fatigue (brain and body), increasing depression, anxiety. The symptoms have become debilitating. I have had numerous medical tests performed (including scans). The only abnormality was the EB antibody levels (results below). I am so frustrated and disappointed that there is no "approved" treatment for Chronic Epstein Barr.

Interested in more discussions like this? Go to the Infectious Diseases Support Group.

I know you posted this a long time ago, but I am looking into trying Valtrex for Chronic EBV. Did you end up trying it? Was it effective? Did your energy improve? Are you able to be more active again? I’m an endurance athlete and have been battling my latest flare up for 2.5 years now. If you’ve tried other anti virals or meds, please list with results if you’d be so kind! Thank you!

REPLY

Hi,
I know both message are over a year or two ago but wanted to share with you. I also was recently diagnosed with EBV. The fatigue is debilitating at times. I just started Valacyclovir for 7 days. I will post results after my 7 days. If you have tried this medicine please let me know if you had good results.

REPLY
Profile picture for breez58 @breez58

Hi,
I know both message are over a year or two ago but wanted to share with you. I also was recently diagnosed with EBV. The fatigue is debilitating at times. I just started Valacyclovir for 7 days. I will post results after my 7 days. If you have tried this medicine please let me know if you had good results.

Jump to this post

@breez58 I don't want to disappoint but there's really no treatment for the disease is just managing the symptoms. I tried antivirals many times with no results. And I'll actuality my viral loads are higher than they were before I did antivirals.

REPLY
Please sign in or register to post a reply.